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How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 2 9:39am | Replies (128)

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@charlotte61

Thanks for the info, nyxygirl. Yes, my doctor did ask me if I had any headaches or jaw pain when I was first diagnosed with PMR, so he is aware of the connection between PMR and GCA. I'd never heard of either condition until I was diagnosed, and am keeping my fingers crossed that I don't end up developing GCA along with my PMR. I have never seen a rheumatologist -- I live in a small town, so there probably isn't even one practicing in my area. Even if there was, it would likely mean months of waiting to get an appointment. I don't have a lot of confidence in our ER. After endless hours of sitting around waiting, it seems you either get blown off or misdiagnosed. It would be nice to have a note from the doctor about my PMR diagnosis, so that if I ever did start experiencing GCA symptoms, I could show the ER staff the note so they would take me seriously and fast track me.

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Replies to "Thanks for the info, nyxygirl. Yes, my doctor did ask me if I had any headaches..."

Charlotte. I had PMR somewhere back around 2011 when I finally got off prednisone 2014 I developed GCA. Rheumatologist that took care of me here in Florida. Never mentioned GCA during my treatment. He too knew very little about PMR and kept reducing my prednisone too quickly so I constantly relapsed. I am afraid that unless you are in the Mayo clinic area most rheumatologist do not know much about GCA. I finally found one here in Florida. However, I am still on prednisone and Actemra. Having the knowledge that one can lead to another which in my case only took six months you are one step ahead of the game. A trip to Mayo does help quite a bit. I did get to Minnesota probably around 2015. They are the best.