I’m glad you are able to see a doctor at high volume Sarcoma Center. It is very important and crucial that LMS patients get treatment by a specialist. It makes a Huge difference in care. I’m being treated by Dr. Ganjoo at Stanford.

My subtype is epithelioid LMS. We are in a very rare group. There is a Facebook support group I joined called LMSDR.org that has really helped me out. You should check it out, if you haven’t already. Wealth of information and experience in this group.