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@kjstein

Just adding a little update on my experience with PRRT to Mark's response. I completed my last (of 4) PRRT treatments in January 2022--so this January will be 2 years since completion. I got both tumor shrinkage and stability and some of the shrinkage was significant. I've continued with blood work and scans at Mayo Arizona every 6 months and I just completed a visit a few weeks ago. I continued to see some shrinkage for about a year after completion and stability after that. Some of my blood values were moderately lower than normal after treatment and gradually came back up over time. There are still a few results that are at the very low end of normal or even sometimes just out of normal range. My doctors say that is pretty normal for this treatment and not something to be overly concerned about. Keep up a good nutrition program and as much exercise as you can do--both really help to get everything back close to normal and reduce any lingering fatigue. Wishing all good results--it was really effective for me.

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@kjstein
Thanks for sharing your experience. It makes going forward with the treatment more optimistic. Is the shrinkage more visible from ctscan and not from petscan dotatate?
My son is following the Mediterranean diet. He tries to avoid beef which to me is a good source of protein to help with blood count.
All the best to you.