← Return to Newly diagnosed with pancreatic mass — What questions to ask?

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@ncteacher

Questions, so many questions to be asked! I don't think I could give even a basic list of questions. But quickly, here are some ideas...Be sure to ask your oncologist about the recommended treatment, sequence and duration. If the MD says something is or isn't recommended, ask why. Pancan is frustratingly complex, and some patients qualify for treatments that are totally contraindicated for others. (For example, I see people on this board talk about radiation therapy or surgery, but I've been told several times that those are inappropriate for me.) Get medication names so you can look them up later. Will your oncologist handle all symptom and pain control, or do you need referrals to other providers? Get that process started. In my case, my practice automatically refers patients to palliative care, which handles symptom and pain control. Get CDs of your CT/MRI scans and printouts of the radiologists' reports for your own files. The written reports should be posted to your patient portal, if your practice uses one, and you could print them at home; the CDs would have to be ordered via whatever process your imaging center uses, but it's usually pretty easy to get them. By getting these items, if you want to seek a second or third opinion, you have the full track record to share with those providers.

I take a notebook to every MD session and take notes, so I have a running record of things we've discussed. As I'm sure you've already done, start reading--anything and everything you can find. Keep a notebook and pen nearby as you read so you can write down comments and questions that occur to you. Before you go into your MD appointments, organize those questions and prioritize. You might luck out and get a really good session (my first session with my new oncologist lasted nearly an hour), or you might get 10-15 minutes max. Find out how you can send additional questions to your oncologist. Many practices have patient portals with a rudimentary message system, and perhaps you can use that to follow up on questions you couldn't get to in the meeting.

I'm sure I've left out a thousand ideas, but hopefully those few will help. Good luck! Waiting is the worst, isn't it?

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Replies to "Questions, so many questions to be asked! I don't think I could give even a basic..."

So helpful! Thank you! I will take a notebook for sure. That’s an excellent suggestion! 😀