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Diagnosed with Uterine Cancer (Leiomyosarcoma)

Gynecologic Cancers | Last Active: Jan 31 6:34pm | Replies (99)
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@joan450

Well, I've changed my insurance so that I can consult with a Dr. at Sloan Kettering who has experience with (myxoid) leiomyosarcoma, so I've postponed radiation until then. The consultation should be close to December 1st. I was about to begin radiation, but I'd rather consult with her first.

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cjacobs99 | @cjacobs99 | Nov 22, 2023

I’m glad you are able to see a doctor at high volume Sarcoma Center. It is very important and crucial that LMS patients get treatment by a specialist. It makes a Huge difference in care. I’m being treated by Dr. Ganjoo at Stanford.

My subtype is epithelioid LMS. We are in a very rare group. There is a Facebook support group I joined called LMSDR.org that has really helped me out. You should check it out, if you haven’t already. Wealth of information and experience in this group.

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