← Return to Myelomalacia: Let's connect

Discussion
lanieg (@lanieg)

Myelomalacia: Let's connect

Spine Health | Last Active: 1 day ago | Replies (50)

Comment receiving replies
@rasmus07

<p>Is there any cure for myelomalacia?</p>

Jump to this post


Replies to "Is there any cure for myelomalacia?"

@rasmus07 Hello and welcome to Connect. I saw the notes in your profile that you sustained a neck spine fracture and spinal cord injury causing myelomalecia and severe spinal cord damage.

I personally have known 2 people with similar spine injuries caused by spine fractures. This is a difficult injury to live with and the disability it creates. I am a Mayo spine surgery patient, and I want you to know about a spine surgeon at Mayo who is researching spinal cord injuries and has had some success with stem cells. Not every patient in his study has improved, but one guy who had a surfing accident spinal cord injury has improved a lot.

Here is some information about this surgeon, Dr. Mohamad Bydon.
https://www.mayoclinic.org/biographies/bydon-mohamad-m-d/bio-20147826

https://newsnetwork.mayoclinic.org/discussion/new-hope-for-regaining-his-old-life-after-being-paralyzed/https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/stem-cell-treatment-after-spinal-cord-injury-the-next-steps/mac-20488605

Research Clinical trial of stem cell therapy for traumatic spinal cord injury
https://www.mayoclinic.org/medical-professionals/neurology-neurosurgery/news/clinical-trial-of-stem-cell-therapy-for-traumatic-spinal-cord-injury/mac-20429602

I don't know Dr. Bydon personally, but I do know he is an excellent surgeon and highly respected. At the time I was looking for a surgeon for my spinal stenosis and approaching Mayo, I was considering 2 surgeons and Dr, Bydon was one of them. I chose the other one because he had a medical paper that described my unusual symptoms that many surgeons had misdiagnosed before I came to Mayo.

Jennifer

I'd like to add my welcome, @rasmus07. I moved your discussion about myelomalacia to the Spine Health support group to this existing discussion:

- Myelomalacia: Let's connect https://connect.mayoclinic.org/discussion/chronic-myelomalacia/

I did this so that you can connect with other members like @lanieg @robinsitzmann @dhansen78 @hodinator @jpko2023 @dksnyder @mizen as well as @jenniferhunter. Simply click the link to read the messages so far.

Rasmus, this seems like a recent injury for you. How are you managing and adapting to the wheelchair? So many changes.