Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@ramakambhatla

wsh66: Hi.. What is the cancer? Some chemotherapy medications used for one cancer may cause another cancer.
I am interested to know, how this rare cancer is diagnosed? Hope things get better, tho' the history looks perplexing.
Try to reply.

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Hello @wish66, I am not sure if you have seen the following discussion or not, but you may be interested in the discussion about sarcoma's, https://connect.mayoclinic.org/discussion/diagnosed-with-sarcoma-lets-share/.

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@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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Thanks.
Appreciate the help!
I'll look into it tonight.

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Hello,

This is my first post. I am scheduled to go to Mayo in Rochester,MN beginning of April.

I am a 40 yo female having a 17yr history of migraines, 6 yr of Sarcoid (currently in remission), 4yr of Tietze Syndrome (chronic costochondritis), 2 yr of Fibromyalgia. Fibromyalgia started after emergency surgery and needing blood transfusions. I usually will first have pain and inflammation in my rib cage~Tietze Syndrome/costochondritis when a flare starts, then it usually leads to migraines, fatigue, and more classic fibro flairs.

This past January I had a flair and it has progressed to being daily migraines ever since (6+weeks). Early on the body pains and headaches/migraines were easy to treat then it got progressively harder to control until I was having daily 8/10 through 10/10 pain scale migraines. I was hospitalized for 5 days with the goal of getting a 24hr break of the migraines, I was discharged without meeting the goal. Since then I have been on multiple drugs and i have had one singular day migraine free. I worked last week from home, and had the ability to take a break for a few hours a day when I felt a headache coming on. Now that im back in the office, they are occurring more frequently. I feel like my neurologist, who is the only headache specialist in the area, has run out of ideas on how to break this recurring cycle of migraines. I already do Botox every three months, take 2 preventative medications, and have added the normal supplements to my daily vitamin/pill routine.

I am hoping my visit to Mayo will 1) identify a new plan to control my migraines and 2) create a plan to control my more frequent Fibro flares. My life has been severely impacted by having these pain and fatigue conditions. I am (was?) a fairly active person. I am a whitewater kayaker and ww kayak instructor. I love photography, hiking, camping, and generally being outside, but more often than now I don't have the spoons (aka energy) to do much.

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Hello, I have had chronic pain for 17 years now.. RSD/CRPS. I have had several back surgeries, SCS implants, narcotics, etc. I have been diagnosed with Myasthenia Gravis as well as some other major health issues

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@justina

Hello, I have had chronic pain for 17 years now.. RSD/CRPS. I have had several back surgeries, SCS implants, narcotics, etc. I have been diagnosed with Myasthenia Gravis as well as some other major health issues

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Please elaborate, I don't know what RSD/CRPS, SCS implants or Myasthenia Gravis are but I'm interested. Thanks in advance

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@jx2sunderland

Hello,

This is my first post. I am scheduled to go to Mayo in Rochester,MN beginning of April.

I am a 40 yo female having a 17yr history of migraines, 6 yr of Sarcoid (currently in remission), 4yr of Tietze Syndrome (chronic costochondritis), 2 yr of Fibromyalgia. Fibromyalgia started after emergency surgery and needing blood transfusions. I usually will first have pain and inflammation in my rib cage~Tietze Syndrome/costochondritis when a flare starts, then it usually leads to migraines, fatigue, and more classic fibro flairs.

This past January I had a flair and it has progressed to being daily migraines ever since (6+weeks). Early on the body pains and headaches/migraines were easy to treat then it got progressively harder to control until I was having daily 8/10 through 10/10 pain scale migraines. I was hospitalized for 5 days with the goal of getting a 24hr break of the migraines, I was discharged without meeting the goal. Since then I have been on multiple drugs and i have had one singular day migraine free. I worked last week from home, and had the ability to take a break for a few hours a day when I felt a headache coming on. Now that im back in the office, they are occurring more frequently. I feel like my neurologist, who is the only headache specialist in the area, has run out of ideas on how to break this recurring cycle of migraines. I already do Botox every three months, take 2 preventative medications, and have added the normal supplements to my daily vitamin/pill routine.

I am hoping my visit to Mayo will 1) identify a new plan to control my migraines and 2) create a plan to control my more frequent Fibro flares. My life has been severely impacted by having these pain and fatigue conditions. I am (was?) a fairly active person. I am a whitewater kayaker and ww kayak instructor. I love photography, hiking, camping, and generally being outside, but more often than now I don't have the spoons (aka energy) to do much.

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Welcome @jx2sunderland. Thank you for sharing about yourself. Here are a few links to conversations on Connect that you may find interesting:

- https://connect.mayoclinic.org/discussion/new-daily-persistent-headache/
- https://connect.mayoclinic.org/discussion/fibromyalgia-pain-28e002/

I also recommend checking out the group devoted entirely to Visiting Mayo Clinic, https://connect.mayoclinic.org/group/traveling-to-mayo-clinic-minnesota/.

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@justina

Hello, I have had chronic pain for 17 years now.. RSD/CRPS. I have had several back surgeries, SCS implants, narcotics, etc. I have been diagnosed with Myasthenia Gravis as well as some other major health issues

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@jx2sunderland

Hello,

This is my first post. I am scheduled to go to Mayo in Rochester,MN beginning of April.

I am a 40 yo female having a 17yr history of migraines, 6 yr of Sarcoid (currently in remission), 4yr of Tietze Syndrome (chronic costochondritis), 2 yr of Fibromyalgia. Fibromyalgia started after emergency surgery and needing blood transfusions. I usually will first have pain and inflammation in my rib cage~Tietze Syndrome/costochondritis when a flare starts, then it usually leads to migraines, fatigue, and more classic fibro flairs.

This past January I had a flair and it has progressed to being daily migraines ever since (6+weeks). Early on the body pains and headaches/migraines were easy to treat then it got progressively harder to control until I was having daily 8/10 through 10/10 pain scale migraines. I was hospitalized for 5 days with the goal of getting a 24hr break of the migraines, I was discharged without meeting the goal. Since then I have been on multiple drugs and i have had one singular day migraine free. I worked last week from home, and had the ability to take a break for a few hours a day when I felt a headache coming on. Now that im back in the office, they are occurring more frequently. I feel like my neurologist, who is the only headache specialist in the area, has run out of ideas on how to break this recurring cycle of migraines. I already do Botox every three months, take 2 preventative medications, and have added the normal supplements to my daily vitamin/pill routine.

I am hoping my visit to Mayo will 1) identify a new plan to control my migraines and 2) create a plan to control my more frequent Fibro flares. My life has been severely impacted by having these pain and fatigue conditions. I am (was?) a fairly active person. I am a whitewater kayaker and ww kayak instructor. I love photography, hiking, camping, and generally being outside, but more often than now I don't have the spoons (aka energy) to do much.

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@jx2sunderland

I'm usually quite skeptical about home remedies. But I'll tell you what a man told me Sunday.

He had serious arthritis in his large joints 25 years ago, and started putting a teaspoon of vinegar in his morning tea, and he's been pain free ever since. A friend of his had bad migraines and added 3 tablespoons of vinegar to a beverage every day, and the migraines stopped.

As I said, I'm a born skeptic, but pain does make us willing to try new things that has been effective for others.

Jim

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@jx2sunderland

Hello,

This is my first post. I am scheduled to go to Mayo in Rochester,MN beginning of April.

I am a 40 yo female having a 17yr history of migraines, 6 yr of Sarcoid (currently in remission), 4yr of Tietze Syndrome (chronic costochondritis), 2 yr of Fibromyalgia. Fibromyalgia started after emergency surgery and needing blood transfusions. I usually will first have pain and inflammation in my rib cage~Tietze Syndrome/costochondritis when a flare starts, then it usually leads to migraines, fatigue, and more classic fibro flairs.

This past January I had a flair and it has progressed to being daily migraines ever since (6+weeks). Early on the body pains and headaches/migraines were easy to treat then it got progressively harder to control until I was having daily 8/10 through 10/10 pain scale migraines. I was hospitalized for 5 days with the goal of getting a 24hr break of the migraines, I was discharged without meeting the goal. Since then I have been on multiple drugs and i have had one singular day migraine free. I worked last week from home, and had the ability to take a break for a few hours a day when I felt a headache coming on. Now that im back in the office, they are occurring more frequently. I feel like my neurologist, who is the only headache specialist in the area, has run out of ideas on how to break this recurring cycle of migraines. I already do Botox every three months, take 2 preventative medications, and have added the normal supplements to my daily vitamin/pill routine.

I am hoping my visit to Mayo will 1) identify a new plan to control my migraines and 2) create a plan to control my more frequent Fibro flares. My life has been severely impacted by having these pain and fatigue conditions. I am (was?) a fairly active person. I am a whitewater kayaker and ww kayak instructor. I love photography, hiking, camping, and generally being outside, but more often than now I don't have the spoons (aka energy) to do much.

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@jimhd, I think your skepticism on this topic might be well-founded. Since vinegar is acidic, it can cause caustic burns internally. Here is a blog livestrong.com, https://www.livestrong.com/article/292871-what-are-the-dangers-of-drinking-vinegar/. While that website is not from a medical institution, it does outline some of the concerns and reiterates the things many of us say, consult your physician before adding any new medication or change in diet such as this. I did see that vinegar has been used for centuries for different reasons before many conventional medicines were invented, so I am not meaning to discredit your claim here, only add a bit of a warning.

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@jx2sunderland

Hello,

This is my first post. I am scheduled to go to Mayo in Rochester,MN beginning of April.

I am a 40 yo female having a 17yr history of migraines, 6 yr of Sarcoid (currently in remission), 4yr of Tietze Syndrome (chronic costochondritis), 2 yr of Fibromyalgia. Fibromyalgia started after emergency surgery and needing blood transfusions. I usually will first have pain and inflammation in my rib cage~Tietze Syndrome/costochondritis when a flare starts, then it usually leads to migraines, fatigue, and more classic fibro flairs.

This past January I had a flair and it has progressed to being daily migraines ever since (6+weeks). Early on the body pains and headaches/migraines were easy to treat then it got progressively harder to control until I was having daily 8/10 through 10/10 pain scale migraines. I was hospitalized for 5 days with the goal of getting a 24hr break of the migraines, I was discharged without meeting the goal. Since then I have been on multiple drugs and i have had one singular day migraine free. I worked last week from home, and had the ability to take a break for a few hours a day when I felt a headache coming on. Now that im back in the office, they are occurring more frequently. I feel like my neurologist, who is the only headache specialist in the area, has run out of ideas on how to break this recurring cycle of migraines. I already do Botox every three months, take 2 preventative medications, and have added the normal supplements to my daily vitamin/pill routine.

I am hoping my visit to Mayo will 1) identify a new plan to control my migraines and 2) create a plan to control my more frequent Fibro flares. My life has been severely impacted by having these pain and fatigue conditions. I am (was?) a fairly active person. I am a whitewater kayaker and ww kayak instructor. I love photography, hiking, camping, and generally being outside, but more often than now I don't have the spoons (aka energy) to do much.

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I have heard people swear by it. Im willing to give it a try.

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