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How do you diagnose myasthenia gravis?
Autoimmune Diseases | Last Active: Feb 28 7:26am | Replies (36)Comment receiving replies
I wish I could give you more useful advice but I’m unfamiliar with Imuran, so can shed no light on its efficacy. As to the best specialist, I guess a neuromuscular specialist would be the best, but your doctor should be able to tell you this. As I’ve said, but want to emphasise, have a Thymectomy. When I was a young woman I was extremely weak, but over the years my symptoms subsided and then disappeared, and I can only assume the removal of my thymus gland made that possible. MG is different for each person who has it, so how you deal with it will depend on your particular symptoms. Do you mind me asking what they are? If we have an overlap I might be able to give you more specific advice.
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Congratulations on having your symptoms disappear! How long have you been in remission?
You asked about my symptoms. My primary symptom is profound fatigue that affects every aspect of my life and is very limiting. Something as simple as a shower is a major event that typically requires a rest before it can be completed. I am frequently short of breath and have had several episodes of respiratory distress. Fortunately, I have not required hospitalization. And, finally, I have trouble chewing and swallowing. I have significant vision problems, but it’s hard to sort out whether that is related to MG or due to another condition. Are these similar to to symptoms you had?