← Return to CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Discussion

CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Autoimmune Diseases | Last Active: Feb 11 11:30am | Replies (349)
Comment receiving replies
@becsbuddy

@lynn66618 There are several discussion groups about CIDP. I included this link to one of the discussions in which @johnbishop listed the groups with links.
https://connect.mayoclinic.org/comment/786104/
There is a lot of good information in the discussions. Be sure to ask any questions you want.
What can I help you with today?

Jump to this post

Replies to "@lynn66618 There are several discussion groups about CIDP. I included this link to one of the..."
lynn66618 | @lynn66618 | Nov 20, 2023

Thank you!!

VIEW AND REPLY
evigg208 | @evigg208 | Feb 8 12:49am

I don't know if this is relevant to this Support Group, but I have been diagnosed with MMN. I will be starting a 6 month course of IVIg. My research has said that, if the IVIg doesn't work, I may have ALS. I have foot drop and lots of neuropathy pain in this foot. I have been through many MRIs, EMG, NCS, and lab tests. Abnormal results are EMG, NCS, and anti-gangloside antibodies. Right now, Mayo Clinic has me in a "wait and see" mode and will be interested in seeing if the IVIg relieves my symptoms.

VIEW AND REPLY