1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

2jalapenos | @2jalapenos | Mar 8, 2018
In reply to @ramakambhatla "2jalapenos: If possible, being an RN should help to contact a pain doctor, as it seems..." + (show)
@ramakambhatla

2jalapenos: If possible, being an RN should help to contact a pain doctor, as it seems like a problematic pain.
Hoping and wishing well for relief, soon.

Jump to this post

Thanks.
I have had 3 pain doctors. The one I have presently is great. He listens and is very pro active. But he has not been successful with my insurance.
I decided today, i will try to find a "patient's advocate" within the health insurance.

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Mentor
John, Volunteer Mentor | @johnbishop | Mar 8, 2018

@2jalapenos -- Does the state you live in have a patients advocate program? I did find a patient advocate organization website that may be helpful:

-- http://www.patientadvocate.org/resources.php?p=180

John

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Mentor
Jim, Volunteer Mentor | @jimhd | Mar 8, 2018
In reply to @wsh66 "What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's..." + (show)
@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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@thomasesmom

The problem I have, both on my small Android phone and my tablet, is that I have a hard time touching the precise spot for each letter, and sometimes I lose what I've written completely.

My wife has the same phone and swipes from one letter to the next, but I've never been able to master that. Have you tried that?

Jim

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Stephen | @wsh66 | Mar 8, 2018
In reply to @wsh66 "What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's..." + (show)
@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

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My phone that takes dictation cost $100.00 and it came with a $25.00 data program with no contract other than month to month $25.00/month.

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Mentor
Jim, Volunteer Mentor | @jimhd | Mar 8, 2018
In reply to @ramakambhatla "2jalapenos: If possible, being an RN should help to contact a pain doctor, as it seems..." + (show)
@ramakambhatla

2jalapenos: If possible, being an RN should help to contact a pain doctor, as it seems like a problematic pain.
Hoping and wishing well for relief, soon.

Jump to this post

@2jalapenos

Maybe AARP would have a helpful resource?

Jim

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Stephen | @wsh66 | Mar 8, 2018
In reply to @wsh66 "What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's..." + (show)
@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

Jump to this post

It's not necessarily the wrong group. I just understand what you were talking about. It sounds just awful. I take Amitriptyline and Lyrica, both to quiet over active nerves. Maybe those would help you.

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Stephen | @wsh66 | Mar 8, 2018
In reply to @wsh66 "What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's..." + (show)
@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

Jump to this post

That swipe thing doesn't work for me. I have numbness in my finger tips. Typing is really tough,(he said typing and correcting the same word three times). I do rely on predictive text on my Samsung III. You just have to watch what your saying. I have a Lenovo computer that I can operate with only my voice. I believe Windows 7 and above have this feature.

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lorenzolarry | @lorenzolarry | Mar 8, 2018

Hello my name is Lorenzo and I deal with it every day and sensitive to pills so go figure huh but hope you feel better

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1 reply
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Mar 9, 2018
In reply to @lorenzolarry "Hello my name is Lorenzo and I deal with it every day and sensitive to pills..." + (show)
@lorenzolarry

Hello my name is Lorenzo and I deal with it every day and sensitive to pills so go figure huh but hope you feel better

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Hello @lorenzolarry, welcome to Connect and thank you for introducing yourself to the Chronic Pain group. If you don't mind sharing, what leads to your chronic pain? Mine is a rare genetic bleeding disorder that has led to end-stage arthritis, joint damage, and joint replacements.

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Mar 9, 2018
In reply to @wsh66 "What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's..." + (show)
@wsh66

What is anesthesia dolorosa? Please take the time to use whole sentences. We're interested but it's hard to respond in a helpful way to that which we can't comprehend. I don't like typing on the computer, it hurts. I use the voice to text function on my Samsung III which is an older phone. I always need to proof read but it's still better than the keyboard.

Jump to this post

Hello @2jalapenos, here is a discussion on trigeminal nueralgia, https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/.

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