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← Return to PN and Tamsulosin (Flomax)
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@ray666 - Ray, - I'd use AISPN - I think the axonal is important and you have the identical dx that Mayo gave to me. I've had about 4 years to digest what I was told, and I know this is something you may have suspected but when you hear it confirmed, it's different. Like others with PN, no cure. But you can live with this and as you have said on this forum, be prepared to make adjustments. You will make adjustments and continue to meet our friends at the coffee shop. Keep moving, stay positive and learn what you can about your diagnosis. Knowledge how to live with this is important. Remember, there are a lot of things out there a lot worse. This is just another bump in the road. Ed
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Good morning, Ed (@njed)
I suppose I can add the “A” to “ISPN” without it totally demolishing my plans for the day. 😀 PN has taught me a lot about the need to remain flexible, be willing to make adjustments, and be ever-ready to deal with the unexpected. If it weren’t for wishing I hadn’t been saddled with PN to begin with, I could be persuaded to say the challenge of living this way is almost fun*––like being invited to sit in the captain’s chair and take over flying a Boeing 777. The complexities of managing PN (what doctors, what medications, what exercises, etc.) are––in my imagination––something like a first-time look at a Boeing 777’s instrument panel. 😀
*Before anyone takes me to task, I do NOT think of my PN as “fun." Far from it! It is most definitely UN-fun.
Ray (@ray666)