Anyone have swollen legs and testicles, peeing blood with stage 4 PC?

First off so sorry for your father.

Please make sure he is being seen at a cancer center. Mayo is a world class facility. As is MSK and Dana Farber.

Sounds quite urgent but there's hope, but he needs to be seen by an expert in treating prostate cancer.

In my prayers.

"There is no standard treatment for blood in urine and prostate cancer. That’s because blood in the urine is a symptom and not a disease in itself. https://prostatecancernewstoday.com/blood-in-urine/#:~:text=Blood%20in%20Urine%20Experienced%20as%20Symptom%20of%20Prostate%20Cancer&text=But%20in%20the%20case%20of,red%2C%20or%20tea%2Dcolored.
University of Chicago has a cancer center if that is where you are located.
Echo dmccarthy he needs treatment at a good cancer center right away. It must be terribly uncomfortable.
This is an unbearably tough time for him and for your family.
Wishing him well.

(Layperson writing)

I'm so sorry to hear that. The blood in the urine, as others have mentioned, could be anything. I also have stage 4 prostate cancer, and for me the blood in my urine turned out to be was because of radiation damage to the bottom of my bladder where it touches the prostate (confirmed via cystoscopy). As long as I stay hydrated and moderate my intake of caffeine, carbonated drinks, spicy food, and alcohol, the damaged area doesn't get irritated and I don't see blood.

I get a range of blood tests every 3 months, probably like your dad. There's no single magic test, so they look at lots of things in combination: for example, for the kidneys, they might be looking at things like Albumin, eGFR, LDH, MCHC, RBC, RDC (at least in my case) as well as symptoms like kidney pain, urination frequency, and blood in the urine. Abnormal levels for most of those blood tests can indicate other issues, too, which is why they consider all these together to see what story they tell.

Swelling could also be due to lymph nodes, depending on where it's happening. There are many blood tests that can indicate problems with the lymph nodes (in addition to other things) — some of them are the same as the kidney tests — so again, they'll be looking at the whole story.

Finally, they'll be considering his age and health. I'm relatively young (56 at time of diagnosis; 58 now), so they've treated me very aggressively. If your father is elderly and frail, then aggressive treatments could do him more harm than the disease itself — that was the case for my dad with stage 4 colon cancer — so they might be taking more of a palliative focus, trying to keep him comfortable and slow progression where they can.

Your father's oncology medical team should be available to discuss all of this with him, and also (if he consents) with you. If he gives you permission to be there, bring a notebook and write everything down, because it's hard to remember later, especially at an emotionally-difficult time. My spouse did that for me in the early weeks when I was hospitalised, and I really appreciated it. And don't be afraid to ask "why?" and "what if?" questions for both diagnosis and treatment.

@tcastro, I can imagine that you are scared. You're not ready to lose your father too. Has your dad been able to see his oncologist? Have they been able to help alleviate his symptoms? Does he have a palliative care doctor?

Blood in the urine can be anything or just inflation. What type of treatment has he had?

He is located in mt.vernon il. He has to go to Chicago to get a radiation shot. He is currently in the hospital in major pain. He says he is peeing out blood and keeps having the urge to n pee but it won't come out.

Yes, he has an oncologist. The plan is to put a tube in his back to relieve pressure. And start him on a new chemo pill.

You might ask if they could insert a foley.
Bless you.

I started peeing blood after radiology treatments. My oncologist sent me back to my urologist. They performed a test that I can't remember the name of, but basically, they looked inside my bladder and they determined that the bleeding was due to scar tissue in my bladder from the radiation treatments. They also told me it wasn't much to worry about (assuming it didn't get worse) and to stay off NSAIDS and drink plenty of water.

If your pops hasn't had radiation treatments then this is probably not his issue, however I would say you should still hollar at the urologist to see what they say. Blood in the urine is kind of their thing.

I was diagnosed Stage 4 in 2018 and I am still around. Stay strong!

As I mentioned earlier, I'm in a similar situation to @lcashell . In addition to staying hydrated, my urology oncologist told me to reduce or eliminate these common urinary-tract irritants:

- caffeine
- alcohol
- spicy foods
- carbonated beverages

(And probably others I've forgotten; opinions vary on citrus, but wasn't a problem for me.) Not all of them affect everyone with radiation bladder damage, but cutting them down is the first and easiest thing someone can do; then you can gradually reintroduce and see which ones actually cause you issues.