New here. Long time with TN & now anesthesia dolorosa. Had gamma knife and 2 MVD procedures. Varies medication but severe allergic reaction. Taking Vicodin just to tolerate life. Taking several naps throughout the day so I don't repent on Vicodin.
My insurance (BC & BS) said no to brain stimulator.
I have tried PT, Accupuncture, diets but the constant burning, stabbing,sand paper grinding on my right lips, cheek, nose, gums and eye is horrible. Hurts to talk or being on the computer for more than 30 min. Always TIRED even before Vicodin.
I hit a dead end. Presently on disability funds from work. But this is coming to an end. Mutual wants me to get ANY type of work. I was an RN x 30 yrs.
My hope and strength is on God but the pain is unbearable.
Need direction on how to fight insurance and what type of job would be suitable. Also getting social security disability..SSD. But it's ridiculous.
Oh well need to get well to return back to work.
Thx for letting me share

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