← Return to Help! Need coping strategies for long Covid diagnosis and symptoms

Discussion
Comment receiving replies
@smdawson540

I have had long COVID for 3 years. Everything that Long COVID has caused in my body is non curable. I strongly suggest working on getting into a long COVID clinic. I am not who I used to be and am not going to be who I used to be. I have somewhat accepted that. I no longer try to do what I did before. I have found things that in my very exhausted, sore, sick, etc state I can do that make me happy. I do breathing exercises that help calm me down. I can't take anti anxiety medicine because of the other medicine I take. I used to take an allergy pill , exercise, eat well, do things with friends, family and grandchildren. I am starting to do some of this, but very limited and catered towards my capabilities. I have learned that I need to take care of myself first. I no longer feel guilty about this. I have to have a calm peaceful environment. I am able to work from home, I can't drive due to the insane dizziness and passing out. I wear an abdominal binder which does help but does not fix this. Long COVID caused me to have POTS. I also have neuropathy, CRPS, gastroparesis, and on and on. I am trying to focus on what is good in my life instead of all the miserable changes in my life due to Long COVID. If I could take anti anxiety medicine I would. I am able to work from home because my health issues caused by Long COVID are covered under the ADA (Americans with Disabilities Act). My CRNP at the Long COVID Clinic has to complete these every so often. My supervisor was not happy about this but she has finally accepted it. I wish I could be better and back in the office setting, but I can't. I am a survivor. I am not going to let this destroy me. It has taken me a while to get the point of acceptance, to develop coping skills and to understand that I can't fight this but I can do things to mitigate the symptoms. This was not easy. I hope you are able to find a way to calm your anxiety and manage living in your new normal.

Jump to this post


Replies to "I have had long COVID for 3 years. Everything that Long COVID has caused in my..."

Thank you so much for sharing!!! I also got a letter from my primary doctor and getting an updated letter every 3-6 months. Sometime my pulmonologists writes it too. It has been two years now after 5 months of hospitalisation due to Covid. I also accepted my situation and limitations but I am fighting and doing what I can to move me revocery forward. I am improving but very very slowly. Doing physical therapy helps a lot too.. walking daily and focusing on myself to stay calm and peaceful at all cost. I’m taking only one anxiety pill daily 10mg and feeling it really helps a lot… Learning how to pace myself and stopping when I notice the first moment of increased anxiety or stress was a challenge but I’m learning. My body used to punish me for overdoing it and it would put me to bed for 5 days at a time when I wasn’t able to even think straight due to extreme exhaustion but now as I’m learning to stop immediately as soon as I notice a slight discomfort I am able to manage not to overdo .. Now the extreme exhaustion lasts only one day .. I believe the brain has the amazing capability to rewire itself and I am determined to continue all therapy I am able to handle to help the brain learn new detours.. Good luck and God bless you!! 🙏