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Anyone have neuroendocrine tumor (NETs) of the breast?

Neuroendocrine Tumors (NETs) | Last Active: Jan 6 3:30pm | Replies (48)
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@pamelasantacruz

Hi, just diagnose with invasive breast carcinoma with neuroendocrine differentiation. So little info…Did body CT scan and full breast MRI and reportedly all clear. Partial lumpectomy followed by radiation is the plan. Any feedback appreciated. Thanks, I’m new at this. Pam.

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Replies to "Hi, just diagnose with invasive breast carcinoma with neuroendocrine differentiation. So little info…Did body CT scan..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 20, 2023

Hello @pamelasantacruz and welcome to the NETs support group on Mayo Connect. I'm glad that you found this forum where you can meet others who are experiencing the same thing. I would like to invite others in this group to share their experiences with you such as, @trixie1313 @mir123 and @chanterelle.

Is the lumpectomy scheduled yet?

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trixie1313 | @trixie1313 | Nov 20, 2023

@pamelasantacruz
I'm just over 5 years now since diagnosis, chemo, radiation, and two surgeries (lumpectomy for first tumor and second for further excision of the first and the second tumor found on MRI which turned out to be NET). I've recouped from all and, so far, so good. For a while there I was having to have PET scans every 3 months as some oddities showed up in my lungs but we're now at yearly PET scans. I was advised to take aromatase inhibitors which I did for 5 year and I was encouraged to go an additional 2 years, but quite frankly I just couldn't do the extra 2 years and my body and mind are doing much better without it! My motto is just enjoy one day at a time to the fullest. All the best to you.

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