Sciatica

Posted by liz223 @liz223, Mar 26, 2019

I'm still fighting Sciatica. I had my last spinal injection 3/11. This one did not work well as the two before did. I developed a steroid headache and my blood pressure went dangerously high. I spent two different nights in the ER. I still have the pain as well as weakness in my leg. I have fallen a number of times and now using a walker. I plan to call for an appointment with a neurosurgeon this morning. I'm hoping there is an answer other than surgery because I am 87 years old and do not want to face surgery. A physical therapist is coming to my home today and I am looking forward to whatever he has to suggest. I can find no medication to stop this pain. Any suggestions?

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for Jennifer, Volunteer Mentor @jenniferhunter

@anoyymous123 Thanks for your response. I can see why the surgeon recommend a fusion (OLIF) then. Have you thought about working with a health coach about these spine issues? I was just at a workshop with a demonstration by a health coach and it is really valuable in helping to explore all the details and possible issues related to medical decisions.

As patients, when we are in the midst of a stressful and painful problem, it is sometimes hard to know what to do that would benefit us the most. Having a poor experience with a doctor doesn't help, and that can be mitigated with new opinions about how to solve the problem.

If no decision is made for an intervention, the time can expire during which the issue could have been addressed, and that can leave permanent disability, and a burden on those who need to care for that person who can no longer function well on their own. Hired help is very expensive if you can find it or afford it. Lifting a patient is not handled by typical caregiver agencies. When I was caring for my dad at the end of his life, I needed to have a Hoyer lift to get him in and out of bed and chairs as he could not do this himself and there were no agencies in the area that I could hire for this. It was incredibly difficult and exhausting to take care of him. This also impacted me financially because I couldn't work other than taking care of my parents.

These are things to think about in how to prepare for the future. I was suddenly thrust into being a round the clock caregiver for my parents because they refused to live anywhere but in their own home. How does your wife see her future going forward? What if her pain can be reduced with a new surgeon? I know from my spine experience, that was possible for me. Is that something you want to explore?

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Hi Jennifer:
Thanks for kind advice: Wife will not go back to surgeon who did laminectomy While she had bad pain in back and leg from stenosis it was nothing compared to very terrible pain that she has now after the operation 7 months ago. X rays show spine column has now shifted post op
with misalignment Do not trust this surgeon do revision surgery for problem that he created
in first place. Here in NY no other orthopedic surgeon will see her or even comment on future options once they are aware of prior surgery.Obviously some thing bad happened as a result of what was supposed to be a simple laminectomy.

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Profile picture for anoyymous123 @anoyymous123

Hi Jennifer:
Thanks for kind advice: Wife will not go back to surgeon who did laminectomy While she had bad pain in back and leg from stenosis it was nothing compared to very terrible pain that she has now after the operation 7 months ago. X rays show spine column has now shifted post op
with misalignment Do not trust this surgeon do revision surgery for problem that he created
in first place. Here in NY no other orthopedic surgeon will see her or even comment on future options once they are aware of prior surgery.Obviously some thing bad happened as a result of what was supposed to be a simple laminectomy.

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@anoyymous123 I do agree, and I wouldn't trust that surgeon either. I wanted you to know that surgeons are not all the same. Some are excellent and gifted, and I had one of those. I spent 2 years trying to get help for my stenosis and 5 surgeons missed the correct diagnosis because my symptoms were unusual, so none would help me. There was only one out of those 5 that I would have trusted, but he thought surgery would make me worse because he thought my pain symptoms was an inflammatory problem like MS. He is a top surgeon and department head at a major medical center, and he still missed it. I actually found a case like mine in medical literature, and with that in hand, I contacted a surgeon at Mayo. I think the difficulty of being dismissed so many times helped me get into Mayo Clinic to the best of the best places for spine surgery. I think my surgeon at Mayo would help your wife if you have the ability to travel for care and if your insurance is in network for Mayo. I tried to stay local, and was turned away 5 times, so I got progressively worse. The CEO of Mayo at the time responded to my complimentary letter saying that my spine neurosurgeon was one of Mayo's top surgeons and that was pretty exciting for me to get his personal letter.

May I ask a favor? Would you have your wife read the exchanges we have had here on Connect? She is welcome to join Connect. I learned so much about spine surgery in those 2 years I was searching, and reading medical literature and watching online recordings from spine surgery conferences. I am here to help any way that I can, so please ask questions.

Well, who is this gifted surgeon? The answer is in this post in the "Spine Operation" discussion that you started.
https://connect.mayoclinic.org/comment/954224/
Please share your thoughts.

Jennifer

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Profile picture for denman55 @denman55

I have just recently been hit with sided sciatica. The pain down my butt and leg are making it impossible to sit, stand or walk. It's come on quite suddenly. Normally my sciatica is on my side - that has calmed down. What can I do at home to relieve the horrible symptoms?

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My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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I went to a highly recommended neurologist. This was after epidurals and nerve blocks were of no help, She did nerve conduction tests. Ultimately she prescribed tramadol, diadepam, and gabapentin. It took my body 2 or three days to adjust to the drugs; effects, but it sure helped a lot. A real game changer, as they say.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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@denman55 Have you consulted a spine surgeon? Personally, I prefer a neurosurgeon, but both orthopedic and neurosurgery specialties can do spine decompression surgery. I know you have been suffering with this for a while. Find the best surgeon you can at a highly rated hospital. surgery at the lower end of the spine is more painful and a more difficult recovery because you are bearing most of your body weight there.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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Find a reputable neurosurgeon or an orthopedic surgeon who has done a spinal fellowship. There are solutions.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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I had exactly what you describe but in episodes that would lessen in severity and then return. I had one injection to L2-L3 (L4-L5 was too constricted to allow the needle in. The timing was while the radiculopathy episode was waning so not sure it helped. My spine specialist was willing to do one more 6 months later when another episode hit. He also wanted me to consult a neurosurgeon colleague in the spine clinic. I did so and scheduled surgery at that 90 minute consult. I had anterolisthesis and dangerous degree of movement of the L4over L5 (shown in X-rays done with your back extended). I needed that to be stabilized since a large additional movement could be catastrophic. My surgery completely solved my leg and butt pain. I could walk pain free the day after surgery. I am 4 months out and gradually getting back to normal level of activity. Still so grateful for the surgery which was done with an orthopedic spine specialist attending and 3rd year neuroscience fellow assisting. I recommend finding a surgeon who spends time to explain your individual situation thoroughly. Mine along with his team spent nearly as long before surgery as during surgery (5 hours) explaining to my husband and me. They accurately predicted the hallmarks of my recovery. Best wishes. We are all different challenges but yours sounds so much like mine I had to write!

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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What does the MRI indicate as the cause of the spinal stenosis. Cause will dictate remedy and as intense as sciatic pain is, there is (I'm not allowed to say likely on this site) remedy. If you have a readout from the MRI check for description of the stenosis. Bulging disc, folded ligament, spondylolythesis, loss of vertebral or disc height.

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Profile picture for denman55 @denman55

My Right- sided sciatica, going from my butt all the way down to my ankle has now crippled me. The pain is excruciating and I am having difficulty sitting, standing and walking. My question is: Who do I turn to for treatment? and what treatment/procedures or surgery can be done to help this? My back condition is: Lumbar spinal stenosis which I believe is the cause of the sciatica and I have had an MRI. I'm scheduled to have an epidural steroid injection, but it's only a band-aid and don't think it will help. What treatments has anyone else had for this debilitating condition?

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I'm so sorry you're going through this. Here's my sciatica story: Around the age of 45 in 2008, I had the same issue but only occasionally now. I still have slight numbness on the side of my foot and pinky toe but it was much worse and covered most of my toes back then. I also had muscle loss in my calf. So during one ER visit in 2008, I was given IV gabapentin and an overnight stay then sent home on a steroid Medrol dose pack taper. Up to that point, the pain was so bad that I literally wanted my leg cut off! I was scheduled for surgery prior to that ER visit but after completing the steroids I never got the surgery. I even showed up for surgery and got undressed! By the time my son parked and came back up to the waiting area, I had changed my mind because I felt so much better! On discharge from Johns Hopkins for the NON-surgery😁, I was advised to keep my weight down, do the physical therapy stretches, and stay active. It's been almost 16 years and the only time it flares up I notice is when I don't stretch for awhile being lazy and don't get much exercise. My issue was at L5-S1. I also was out of work for 2 months so I think that also allowed me to heal. Good luck and speedy healing to you. I'll be praying!!

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Profile picture for gently @gently

What does the MRI indicate as the cause of the spinal stenosis. Cause will dictate remedy and as intense as sciatic pain is, there is (I'm not allowed to say likely on this site) remedy. If you have a readout from the MRI check for description of the stenosis. Bulging disc, folded ligament, spondylolythesis, loss of vertebral or disc height.

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https://www.ansellchiropractic.com.au/what-causes-sciatica-type-pain/
Even a tight muscle can trap and squeeze the sciatic nerve. The piriformus. If the MRI doesn't indicate a herniated disc, you might consider a chiropractic visit. You can usually get in to see a chiropractor quickly often same day. You'll know a lot more about the pain after a chiropractic assessment because they are usually very thorough.
I didn't mean to send this in two parts.

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