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@gretchenmpls

Thank you, @colleenyoung for some reason I missed a notification that you had responded. Thank you for sharing other usernames to connect with. I've been on professional calls with Irina Bancos at Mayo and may reach out to her as a starting point for a potential event to be held at Mayo for both physicians and patients to hear more about Cushing's disease diagnosis and quality of life thereafter. Do you have other people to suggest at Mayo that might be interested in helping with an event like that? How do other informational days get started for other rare diseases at Mayo? Your time is appreciated.

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Replies to "Thank you, @colleenyoung for some reason I missed a notification that you had responded. Thank you..."

@gretchenmpls, my first recommendation is that you mark your calendar to attend CareThatFits (https://carethatfits.org/) at Mayo Clinic next year - September? 2024

Read more about patient and physician participation at the annual conference here: https://carethatfits.org/conferences/