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Sueinmn, Mentor,
It was terrific to see in your post your condition has improved greatly over the last year, I always read your posts very carefully and have learned so much from you and others in our community. I hope I can follow in your footsteps.
Once I started Airway Clearance and nebbing 3 % Saline in the fall of 2022, the constant, chronic cough eventually disappeared.
I have had two negative cultures for the MAC which was diagnosed in June, 2022, and have been on the Big 3 since Sep, 2023 and after just two months on Arikayce which I started in July, 2023 of this year I am on a path to clear the MAC. My chief complaint is that my breathing capacity has declined and my Pulmonary Team and ID Doc are not able to pinpoint since I have so much going on...COPD/Empha(severe), BE and the MAC. Decided to invest time and energy into Respir. Therapy as you did and waiting to see the results over time. I've had 6 sessions of mild exercise routines.
I'm hoping to at least pinpoint why my shortness of breath seems to be declining and learn more about what I need to. Thanks again for all that you do for our community.
Flo@Frankie160
Replies to "Sueinmn, Mentor, It was terrific to see in your post your condition has improved greatly over..."
Flo - I am happy to hear that you are not letting the multiple conditions discourage you from trying to reach your personal best.
In addition to the airway clearance, I find it very helpful to do some separate deep breathing or relaxation breathing several times a day. Two particular times are when I sit at my desk to use the computer, and the last thing at night in bed before I sleep.
What kind of exercise are you able to do? Even mild movement like walking can help gently maintain or improve your ability to breathe.
Sue
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Have you had a recent echo cardiogram? I had really bad shortness of breath and it turned out part of the reason was myocarditis...inflamed heart muscle leading to temporary heart failure.