Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

peach414144 | @peach414144 | Mar 4, 2018

In reply to @tbeckys "Hi, my name is Terry and I was diagnosed when I turned 38 although I think..." + (show)

Dear tbeckys. Do not worry so much. I an 80 and have 3 auto,ummune diseases, diabetes, heart, high blood pressure,anemia. glaocoma, macular degeneration spine pinched nerve, disks, etc, rheumatoid arthritis, psoriatic arthritis. and others i cannot think of. Yet, I still live pretty well, have happiness, a new fellow I just met. You will see with a good attitude you can enjoy life. Yes, there are some painful days but then the better ones come back just as the sun comes up. There are people here who do car for you. Sincerely, Peach

Marield65. Marie | @marield65 | Mar 4, 2018

In reply to @tbeckys "Hi, my name is Terry and I was diagnosed when I turned 38 although I think..." + (show)

What is the alternative? You don’t have to take the meds. Life is what you make it. @marield65

peach414144 | @peach414144 | Mar 4, 2018

In reply to @tbeckys "Hi, my name is Terry and I was diagnosed when I turned 38 although I think..." + (show)

Dear Oregongirl, and whomever else reads this. Why do we give three billion dollars to Iran and do not enough for us Americans who are suffering? That money can go a long way for doctors to find cures, or help for us. (Please excuse the politics but it is a good example) I myself have been and still am suffering so bad i think of suicide. But not yet. Continue to hope.

peach414144 | @peach414144 | Mar 4, 2018

In reply to @wsh66 "There is one problem with HIPAA. There is not one red Cent in any government budget..." + (show)

@DearOregon girl. Yes you are correct. Their medical coverage is much better than ours and they do not pay for it. They are not allowed Social Security, they have a much better plan. Who are they? Better than we the people? Put them on our plan and then we would see a change for a better plan for all of us Americans. Hope, hope, hope.

peach414144 | @peach414144 | Mar 4, 2018

In reply to @tbeckys "Hi, my name is Terry and I was diagnosed when I turned 38 although I think..." + (show)

@Yes, i do agree with you. thank you forbringing it out.

momij | @momij | Mar 4, 2018

In reply to @ramakambhatla "Hi.. Thanks.. I think that I should try "Warm water therapy" for better relief of pain..." + (show)

It's been such a huge help in my quality of life!

ramakambhatla | @ramakambhatla | Mar 4, 2018

I could get some perspective of the problem of "Chronic Pain" ; but, I am OK and not trying any pain pump, narcotic pain relievers. Just keep busy with either some meditation, yoga, few simple measures that may help. There is no insurance coverage in India, and any expensive procedure,is out of pocket.

lioness | @lioness | Mar 4, 2018

In reply to @tbeckys "Hi, my name is Terry and I was diagnosed when I turned 38 although I think..." + (show)

Hi Terry I'm Linda a retired L.P.N fibro didn't make me retire early s L2fracture did but I have had fibro for 30 yrs on Lyrica @Tramadol but have stopped the Lyrica it was starting to give me some side effects and didn't help much Dr has me on Cymbalta what a difference I do creams one that's good is Arnica Gel I like it.I do Tapping ,do you?if not you can read about it at Tapping.com.In morning my first thing Ii do is take a warm shower and stretch then have cup of f ginger-turmeric tea ,from Trader Joe's Meditation helps I take Fibro Malic from Vitacost has alot of magnesium in it

doxyjune | @doxyjune | Mar 4, 2018

In reply to @tbeckys "Hi, my name is Terry and I was diagnosed when I turned 38 although I think..." + (show)

@peach414144, If I was able to march (even walk) I would be involved with these new movements. Look who is in the white house. All he is doing is cutting programs that help the citizens of this country. Can't get too political but the new man in town is not helping our broken system. Try not to think about suicide as you never know if your next day will be a better day or if a cure for your suffering may be discovered.

lioness | @lioness | Mar 4, 2018

In reply to @wsh66 "When you're looking for a pain management clinic you must realize they fall into two categories...." + (show)

@wsh66

When you're looking for a pain management clinic you must realize they fall into two categories. I have encountered both. The first one I went to which is no longer in existence thank God, was based around the idea that everyone's pain medication should be limited or be removed completely. That no one should be on pain medication on a permanent basis regardless of their situation. I went to that clinic and told them I had all the pills that I needed, I had doctors to take care of that but what could they tell me about other ways to deal with my pain. I told him the things that I was doing, Qigong , meditation. They told me that for them to instruct me and alternative therapies would be like taking me out of graduate school and sending me back to kindergarten. In other words, they had nothing to offer me but would recommend to my doctors that I be limited to no more than the equivalent of 100 mg of morphine a day. That was about half of what I was taking at that time. The last time I checked those guys were out of existence. the other kind of pain clinic is the one that I have go to at M Health at the University of Minnesota. They evaluated me both physically and mentally, they realized my need for medication was real and they understood that as time goes by your doses have to get larger to have the same effect. They continue to medicate me four more than a year until I was free of infections which I had encountered in the aftermath of cancer treatment. while I was continuing to get infections they could not risk the surgery of opening me up to put the pump in and thread the catheter up my spine. once I was able to have the surgery I got the pump. I came off my heavy doses of medication almost overnight and experience no withdrawal. No withdrawal because I wasn't an addict, I had never abused my drugs, I had never use them to get high. I had never triggered that response in my brain that goes along with getting high and leads to addiction. this is the piece of the puzzle that's so many doctors do not understand. I continue to go to my pain management clinic and get my oil changed every 3 months. They pump out what's left of the old drugs and they pump in fresh drugs. it's done with a needle in the doctor's office and it takes about 5 minutes. the only pain clinic that I know that operates the way that I described above is the one at M health which is part of the University of Minnesota and the Fairview system. I would hate to be just beginning this journey today with what's going on politically with pain medications.. I think we'll see an uptick in the number of people with chronic depression and chronic pain who unfortunately will take their own lives.

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Have you looked into homeopathic medicine Try to find a holistic Dr.,he ,she can point you into the right direction As a rub I use Arnica gel I like it at times I use CBÐ oil balm Homeopathic has nerve pain meds,pain med and alot more.Tapping is another one I use Tappingsolution.com

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