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Well - after all I wrote, I STILL got my doctor's final Label for my affliction wrong - I forgot the word IDIOPATHIC! So my "final" diagnosis from him was actually "Severe IDIOPATHIC Axonal Sensorimotor Peripheral Neuropathy" (I knew when I wrote it before it seemed to be missing some syllables. This is exactly why it helps to refer to our written notes. Good luck tomorrow!!
Replies to "Well - after all I wrote, I STILL got my doctor's final Label for my affliction..."
Hi, Debbie
Well, I had my tele-med chat with my doctor. When I asked him about my condition's proper name, he suggested "idiopathic sensorimotor peripheral neuropathy," short and sweet. He said I could tack on "axonal" if I wanted to, and "poly-" vs. "peripheral"? That would be up to me; I could alternate terms but still say the same thing. As for "severe"? He backed away from calling my PN "severe," although it's certainly borderline and may be heading toward bona fide "severe;" only time will tell. For now, though, I'm going to call my PN "idiopathic sensorimotor peripheral neuropathy" or simply "ISPN" (especially when I'm pressed for time).
As Kurt Vonnegut might say: "So it goes … "
Merry Monday!
Ray
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Good morning, Debbie
These terms! Idiopathic. Axonal. Large Fiber. Small Fiber. Sensorimotor. Peripheral Neuropathy. Polyneuropathy. I'm reminded of those tiny magnetic strips, each strip labeled with a different English word, that we'd attach to the refrigerator door, and then arrange and re-arrange, again and again, each time trying to make a readable English sentence. Do you remember those? That's how I often feel when I'm trying to tell someone about my PN, like I'm re-arranging magnetic strips on my refrigerator door. 😀
Ray