Hello @cadenise1 thank you for writing! I'm catching up on this chain 🙂 I hope you are doing well! I've added some comments to these posts and hopefully will start something. I have not received any responses other than what is listed here. I will try to pursue any leads provided and get something going. Both physicians and patients need this support! Thank you for your interest. May I ask, have you heard of the Cushing's Support and Research Foundation? http://www.csrf.net It's a bit muddled, but lots of good information and we are launching the first ever Cushing's Patient Registry in 2024, very exciting!!