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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: 4 days ago | Replies (323)Comment receiving replies
This is my first posting. I am suffering from this horrible lichen sclerosus and have tried clobetasol and two other corticosteriods over the past four months +- but have not seen any improvement. In fact, things seem to be getting worse. Because of that, along with the added drying, irritating side effects of these ointments, I've stopped using anything. I am at my wits end with this problem.
How long did it take to see improvement for those who used these standard steriods?
Replies to "This is my first posting. I am suffering from this horrible lichen sclerosus and have tried..."
I remember my confusion when first diagnosed. My dermatologist and my gynecologist were offering different treatment plans. I didn't know what to do. I searched online and found the website for the lichen sclerosis support group. They've offered plenty of information and support. I highly recommend them. Kathy and Jocelyne have been lifesavers!
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@alju Welcome to Mayo Clinic Connect. I’m glad that you found this group! There are several discussions that you may wish to check out on lichen sclerosis:
https://connect.mayoclinic.org/discussion/lichen-sclerosis-anyone/
https://connect.mayoclinic.org/discussion/dermatologist-vs-gynecologist-for-lichen-sclerosis/
https://connect.mayoclinic.org/discussion/lichen-sclerosis-4/
https://connect.mayoclinic.org/comment/676975/
This may be way too much information, but it’s helpful. Other members will see your post and join the discussion.
What kind of doctor is currently handling your case?