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Skin squamous cell carcinoma (recurring)

Cancer | Last Active: Jan 24 7:27am | Replies (103)

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@annabach

Maggie Lynn - I am so sorry you have had to fight this battle for so long. I have been in a "siege" with multiple of SCC eruptions for over 2 years, with multiple MOHS procedures, even more excisions, and lots and lots of "we can freeze that one" every time I get a skin check (every 3 months). My doctors tell me that these kinds of frequent episodes occur with no clear reason beyond "sun exposure" in my youth. They have said such multiple occurrences subside with time for similarly obscure reasons. In early July I had three extensive MOHS procedures on my right leg which - given past experience - I knew would take months to heal. One is still draining a bit and my ankle still swells on occasion, but I am grateful to say they are almost all three closed over almost 6 months later, and I'm down to simple 1" Vaseline and Bandaids for wound care. The even better news is that I have had no new "spots" since the July surgery as I write this. I was instructed to take 1,000 units of B3 (Nicotinamide) every day and have been doing so for over a year now. As well, the surgeon looked at all the red patches on my legs and prescribed Triamcinolone Acetonide Cream USP 0.1% which I have been using since summer twice a day for 2 weeks with 1 week off in between applications. The skin on my legs is less aggravated and looks healthier. I can't say for sure the cream is why, but it certainly seems to help quiet my skin. I think I may have told you all this before, but since you are facing yet another round of surgeries and wound care, I thought it bore repeating as some ideas to check with your dermatologist if you haven't already. Again, I am sorry you have to go through this. I don't know anything about the cryotherapy procedure you mention. I tried to find some recommendation for treatment other than MOHS, but everything else I looked into seemed to be contraindicated for SCC on the legs. I send you heartfelt wishes for patience and complete healing. Let me know how you get along. I hope some of those 7 new eruptions can be treated with less invasive procedures. But please stay on top of your outbreaks. A few of mine have been the ultra aggressive kind that can be very problematic. We do what we have to do! Blessings! Anna

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Replies to "Maggie Lynn - I am so sorry you have had to fight this battle for so..."

Anna,
I meant to thank you previously for your kind response.
I am in my 2nd week of driving from Naples to University of Miami for the Cryotherapy enhanced Chemowrap Treatment of SCC's. The doctor is recommending doing this for 4-6 weeks. I will let you know of my results as we go forward.
This dr had also recommended getting the Gardasil Vaccine as well.
I am flying up to Mayo in Jacksonville FL to meet with 2 doctors there, for more opinions and information, and will report back.
Sincerely,
Maggielynn