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New to MAC and considering treatments options: What did you do?

MAC & Bronchiectasis | Last Active: Nov 19, 2023 | Replies (190)
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@patsygirl

Hi there, I have had Mac twice and have it now. I would contact the National Jewish Health in Colorado. They deal with this all the time and our great source of information. Everyone is different with this but it does sound like you need a new doctor. Hope this helps.

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Replies to "Hi there, I have had Mac twice and have it now. I would contact the National..."
dlynn1210 | @dlynn1210 | Nov 19, 2023

I just returned from NJH on Nov 4th. All I can tell you is NJH had me scheduled to measure for a vest. I was directed to meet a respiratory therapist in a room filled with vests. I actually already had a Hill Rom vest that my pulmonologist / Infectious Disease doctor in Tampa had recently ordered for me. They made sure my vest was the correct size for me - extra small. It appears that they believe vests should be utilized. I nebulize with 7% saline while using my Hill Rom vest for 20 minutes. NJH also told me to nebulize with 7% saline twice a day - I had been using 7% in the morning and 3% around 5 PM.

They are expensive but our insurance picked up a huge portion of the cost. I believe the vest does work - chest shaking while nebulizing.
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