← Return to Hello, just recently diagnosed with a case of Bronchiectasis

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@pacathy

I’m pretty new to bronchiectasis, too. I can’t advise on insurance since I have retirement coverage for supplement, but can share my story in case it helps.
I had a couple nodules show up a couple years ago on an x-ray for back pain. The follow-up CT a year later showed ground glass, trees-in-bud, etc. Was sent to pulmonologist who thought I might have MAC (radiologist had said that) or that my post nasal drip might be causing the changes and diagnosed asthma. Started inhaler and Azelastine which helped horrid cough episodes, but little cough persisted. Could not get good sputum sample. Had repeat CT in Jan and had developed bronchiectasis (mild per Mayo).. Sent to ENT for help with PND (opaque frontal sinus) and plan for f/u CT and bronch in April. However, pulmonologist went on emergency leave and Penn Med’s first pulmonary appt was not until August. Luckily, Mayo had a cancellation in March and I got appt. Amazing place. They also thought MAC was likely and did bronch for cultures (6 weeks later-negative cultures), changed nasal sprays and asthma inhaler which finally got rid of my persistent little cough.

I wanted a local pulmonologist and with diagnosis of bronchiectasis, got into Penn’s bronchiectasis clinic in August.
This might be interesting for you: pulmonologist said X-ray changes persist despite clinical improvement and that it was possible that I’d had MAC and cleared it on my own or that it was due to my sinus issues (still a problem). Mayo had also started me on airway clearance with Albuterol nebs and Aerobika and I get nothing up. I even bought hypertonic saline to try and got nothing. He said there might not be mucus in there. I still do nebs and Aerobika daily as preventive, but stopped postural drainage since that caused reflux.
Good luck to you and keep us posted.

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Replies to "I’m pretty new to bronchiectasis, too. I can’t advise on insurance since I have retirement coverage..."

@pacathy It's interesting to read others' histories. Thanks for posting yours. Would you mind saying what medications you are on for asthma and sinusitis?

For several years I have had CT's (for another cancer's surveillance) bronch and possible NTM keeps showing up; I failed 2 sputum tests and have had no symptoms. no treatment because I was stable. In the last few months I have developed a dry cough.

My PCP (also an infectious disease doc) who was following this issue retired. I live in Philadelphia and am a Penn Patient. I know there is a special clinic, but the pulmonologists are in one area and the infectious disease docs in another area...very hard to navigate this huge healthcare system. Would like to talk with you, if possible. Are you able to share any names of MD's. I just found a new PCP at Penn and will ask her to help me with this. I have the name of a pulmonologist at Lankenau, but Penn would be more convenient.

Thanks, in advance.