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PN and Tamsulosin (Flomax)

Neuropathy | Last Active: Dec 10, 2023 | Replies (36)

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@johnbishop

Hi Debbie @dbshears1, I think I would have the same questions if I had your symptoms. It sounds like you can have both axonal sensorimotor PN and small fiber PN together. Not that I understand how it all fits together 🙃. I did find this article that sounds like it's possible but the odds are high.

"Is axonal neuropathy the same as peripheral neuropathy?
Autosomal recessive axonal neuropathy with neuromyotonia is a rare form of inherited peripheral neuropathy. This group of conditions affects an estimated 1 in 2,500 people"
--- Autosomal recessive axonal neuropathy with neuromyotonia: https://medlineplus.gov/genetics/condition/autosomal-recessive-axonal-neuropathy-with-neuromyotonia/

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Replies to "Hi Debbie @dbshears1, I think I would have the same questions if I had your symptoms...."

Thanks so much John- I’ve never seen this before and it’s very interesting! I’ve been through a lot of PT and take a regular Tone & Balance class here, and one thing I’ve learned over my 7 years (or think I have) with this is that I have to know my body limits as it now takes me much longer to recover from over exertion, sometimes to the the tune of days or weeks. That’s hard for me, as I used to run long distance races and would expect to be sore for a day or two afterward, but now, if a therapist asks me to see how many times I can repeat sitting in a chair then standing in one minute, I know to tell them that it’s not an event I qualify for, as the damage will stay a long time, and it’s a better exercise for me to slowly stretch and strengthen things. I’m reminded of that today because I am having PT with a new therapist, in advance of foot surgery in 2 weeks (I’ve decided to move forward with the hammertoes correction…) Last week I tried to impress my new therapist by doing what he asked with the sitting & standing, and now we’ve stopped the therapy as we realize I’ve injured the knees I’ll need to walk with while in my surgical shoe, so we’re letting me rest & repair now until surgery.
On the genetic testing… since I just moved here, my new PCP just recommended that to me recently and made a referral to the genetics group. I have an appointment in January. It will be interesting if there are any findings like your article suggests is rarely found. Thanks again for sharing and making us more informed!!