← Return to Help! Need coping strategies for long Covid diagnosis and symptoms

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@dmlindeman

I dont know how anyone COULD cope well with LC. It is terrible. Very few providers know ANYTHING about it and you cant get in to see the ones that do. I bet the patients who post here at this support grp. know MORE th an most providers. The anxiety and depression are hard to deal with. I dont know which one is worse. I made the decision a couple of weeks ago that instead of spending what little energy I have in continuing to try and see a provider such as the closest LC clinic( seattle) I will just manage it MYSELF. I am doing research on my own ( I have had to do this for ME/CFS for yrs. as I am a 46 yr. SURVIVOR of ME/CFS and Fibro. Reading medical journal articles that have been published joining this support group. I am feeling much better I think due to removing myself from a dysfunctional health care system and worthless providers who dont know anything about LC. I am still doing an obscene amount of bedrest but it helps. am sleeping much better and feeling less depressed and anxious. More like my old self. I dont know WHO that other patient was. Wierdest thing is that for the past almost 18 months I didnt even feel like ME. Anyone else feel that way? Not only feeling so incredibly sick and not able to get any medical help I felt like giving up. Since I am NOT someone who gives up I just made a different choice. Removing the stress from trying to get some medical help and just getting discouraged and frustrated with that has helped tremendously. I even now have my sense of humor back which I lost during the time that i have had LC. An less anxious and less depressed. Hang onto HOPE. HOPE got me thru 46 YRS. of Surviving ME/CFS and Fibro. It will get me thru this too.

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Replies to "I dont know how anyone COULD cope well with LC. It is terrible. Very few providers..."

Dear dmlindeman,
I am so touched by your post, particularly when you acknowledged how taxing it is to try to find a physician that can be of help. My daughter has been suffering from LC all year. She has had COVID 4-5 times (weakened immune system due to brain injury and constant head pain since she was a teen. She's now 43). The fact that she can't work and had to get Medicaid only compounds the problem because so many doctors do not accept it. Even trying to find a decent GP is like trying to find a needle in a haystack. We live in N. VA (close to Dulles Airport). Her pulmonary issues caused her to nearly loose consciousness and she fell as a result which resulted in a hip injury (torn ligament) and 4 bulging discs. She will likely need surgery for that, so her situation keeps getting more challenging. But we are trying to focus on the immediate issue of her hip and - like you - deal with the rest on her own as best as she can.
I commend you for hanging in there and for doing whatever research you can.
I would appreciate you letting me know of any medical journals / websites that you find are credible and helpful.
It can get discouraging; I pray daily for people on this board. How I wish I could carry this burden for her. like many of the people on this board, she has gone through so much over the years. God Bless everyone. Any info you can provide would be greatly appreciated. Virtual Hugs to all.