← Return to Want to talk with others. Have you found relief from CRPS?
DiscussionWant to talk with others. Have you found relief from CRPS?
Chronic Pain | Last Active: Jul 10 6:30am | Replies (235)Comment receiving replies
Replies to "Has anyone had success for CRPS with stellate ganglion block?"
I will not do anything that punctures my skin except needed surgery with a block to prevent new pain tracks from the site to my brain, or IV for say ketamine if it was financially accessable, or MRI dye - which gave me a huge scare last year when she hit a nerve. I have CRPS from the hips down, bowel, now ribcage and layrx from covid spread. I was scared to death to lose my right arm.
The only thing I could think to do was one ketamine treatment that I ended up paying for out of pocket - after hitting the nerve with instant scary pain in my hand, I couldn't get her to take the needle out until I reached over to take it out myself. She wouldn't get the radiologist, got very angry with me, and in the end, was actually mean and nasty, refused to take me to the ER to at least have a paper trial in case! I think she was afraid for herself than she was for me. It wasn't her fault, its just a thing (except how she chose to treat me.)
Every puncture, esp when we now have central sensitivity, is risky according to Dr Getson, and rightfully, he says scares me.
Just my thoughts and mind you, 44 years ago, when I was 24, I DID do all those things. I know that desperation very well. Follow your internal guidance. We have no regrets that way.
My goal in life now at 68, is to look at all pros and con and know whatever I do with much contemplation was the right move for me with the information I had. NO REGRETS. NO self bashing after. However it worked out, I did the best I could at the time. Then "what next" if it wasn't perfect. But I remind myself it CAN be worse. People say it can't possibly get worse, but it can. Namaste and Good luck.