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@virginiaj

What is being monitored to determine if you have hyperparathyroid disorder? Are they looking at calcium levels?

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@virginiaj I have hyperparathyroidism because my parathyroid hormone is high - PTH, Intact is the test name that has been above normal levels for awhile now. Yes it is tied to calcium levels but as I understand it calcium is often more of a side effect of the hyperparathyroidism than the actual cause.

My Endocrinologist is monitoring several items in my blood as well as my urine. She is not one to do any knee jerks and we are very cautious to change only one thing at a time when we decide to make a change. If several things are changed there is no way to parse the changes made to the results of a new set of tests. We have done some very conservative changes with watchful waiting every 90 days to see if the change is moving the needle in the right direction. Unfortunately, I had Covid this summer and it set my Endo tests back - we had to wait another 90 days to get more reliable results. Slow and steady wins the race with my Endo.

To date I have gone on Rx strength Vitamin D and am now on an OTC calcium supplement as well. We are still on the search for the cause and then the treatment. I appreciate my Endo's approach because she really uses the data from the historical tests to inform her decisions on next steps. She also is a big fan of Ocham's razor, as am I.