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PMR Remission

Polymyalgia Rheumatica (PMR) | Last Active: Dec 6, 2023 | Replies (19)

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@katejaha

I began my PMR journey if u will, in Aug. I began prednisone 20 mg and immediately felt much better. Remained on that for one month then went down to 15 for another month, then to 10 mg 4 weeks at which I went to 5 mg. The first 5/6 days I felt a bit achy and tired but it has slowly gotten better. I did see my rheumatologist and had elevated crp blood test 5 days in on 5 mg. I’m a 67 year old female. It’s taken 10 days to feel fairly normal on 5 mg. Having knee replacement on dec 14 so I want to stay at this dose. My orthopedic surgeon is ok with 5 mg. But ultimately I want to wean off totally, yet I don’t want any flares. That’s my story to date lol, as we all know everyone is different and reacts uniquely but it does help me to hear others stories and experiences.

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Replies to "I began my PMR journey if u will, in Aug. I began prednisone 20 mg and..."

remission lasted almost 2 years, then gradually returned. It started subtlety , now is full blown ,
My GP is not convinced its PMR, Will now seek another Rheumatologist
Pain in AM is debilitating, gradually lessens In PM

That sounds very similar to my prednisone dosage story. Once I got down to 5 mg in Sept (started at 20mg in January), I decreased my dosage 1 mg/month, and and now at 2 mg daily. I have stiffness and some pain, mostly in the morning, but am able to exercise (ski, bike, hike), though my stamina is shorter than it was pre-PMR. As we know, everyone is different, but since you started your PMR journey in August, I would say to listen to your body and don't wean too quickly if you experience pain. Best to you!