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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 1 hour ago | Replies (858)Comment receiving replies
Hello Everyone,
My name is Scott. I live in north central NC. Diagnosed with angiosarcoma in April 2023. ENT doctors wanted to do immediate surgery. Quite radical surgery because cancer is on my face near eyelids. I opted for chemo first. Completed 5 cycles of chemo now on 7 weeks of radiation (electron). Explored proton but it would have required extended stay from home. It's a journey! Just trying to connect with others and continue learning. Not much historical medical knowledge because of the rare occurrences of angiosarcoma. Very aggressive and can't be taken lightly.
Replies to "Hello Everyone, My name is Scott. I live in north central NC. Diagnosed with angiosarcoma in..."
Hello Scott - this is Mulkey. I too was diagnosed with Radiation Induced Angiosarcoma of hte blood vessels in April 2023 as a result from receiving 6 weeks of radiation treatment from my 2014 Breast Cancer. The Surgeon said that the Angiosarcoma is a delayed effect of the radiation. I could not find any one who knew about this rare cancer. Also, I live in the DC metropolitan area and not many doctors have had experience with Angiosarcoma (soft tissue sarcoma). I was told by one Medical Oncologist that there are no studies or clinical trials for Angiosarcoma. I am scheduled to see the Medical Oncologist to go over the plan for Chemo but that is not scheduled until December 15th. He stated that he will be giving me generic meds for four (4) cycles running for 3 - 4 months.- but as of now, I don't know the name of the meds or anything else. I am trying desperately to find a doctor to get a second opinion. So I will include you Scott in my Prayers as well. We got to stay connected here,
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Welcome, Scott.
You may also be interested in joining this discussion:
- Is anybody dealing with an angiosarcoma?
https://connect.mayoclinic.org/discussion/angiosarcoma/
Having angiosarcoma so close to your eyelids must be hard. It's good to know you had treatment options to choose from. Has the chemo and radiation shown to be effective for you? How are you doing?