Hey there. I seen your post and wondered if your vibrations have been solved ? I’ve had them since Sept of 20’.. Done all the tests. Taken pills. Gabapentin 300mg 2/daily. Nothing helped. EEG showed nothing and it was on my Birthday and I know my vibrations was very angry and I thought oh boy they’ll figure this out! Nope, it didn’t register for the test. I’ve seen my Neurologist n Neurosurgeon and only thing that they see is my Stenosis of course but in my mid back spine(area at back bra), there’s a cyst that could be causing fluid not to flow through smoothly. I had a Spinal Cord Stimulator back in 2007, it was removed in May 21’ so I could have MRIs. So that area at the top just smidge below it was where the leads were. Now if anybody knows vibrations I’m sure you’ll hear Reviews on People having Spinal Cord Stimulators having them. It’s just like the Vibrations I feel now, just as when one has the Implant knows when you’re driving and come to a stop, you’ll feel that pull or Vibration as your neck/body shifts a bit. So I know vibrations well. But no idea what these are now. Because they started a year before it was taken out. ( it didn’t work for me, 5 yrs tops, I feel like it’s when you’re on a medication you feel that tolerance).
They started in my left foot in mid Sept. 20’ then around Nov. It had moved up to my knee. THEN by Dec. it had gone up to my upper waist line in BOTH Legs. So my thoughts are if it’s a Cyst in my Back then Why did it all start in my foot ? I’ve seen a few diff Drs. Nobody knows anything of course or is it one of those things they don’t tell us completely about ? ((keep you coming back situation) Been there n Done that- like I said it’s been 3 years and 3 months now and NO Solution. They did however tell me that it may be a Mayo Clinic Consultation.. These Vibrations r really Angry n annoying. I’ve cried so often. I’ve wished for anyone ( a Dr) to feel these for 30 seconds. Maybe He/She would have an idea of what’s causing this. I wake up to them and I go to sleep. When I can sleep that is. I don’t sleep much. 2 hrs here n there. ( my daughter got me a Fit Bit and I Monitor it and see that I get roughly 4-6 hr sleep)
Drs say it’s either a Brain Issue or Spine but I’ve seen Same Drs over n over and still NO Idea 🤷‍♀️. I’m 63 now and my Family has suffered through this struggling just as much as I have. When Mom complains, Everyone is involved!
I’m used to them but very annoying to have my Body buzz like this. I feel Body buzzing when I’m near anything like a fridge kicking on or when at a Dr office and ya feel the heating system come on and able to feel that Vibration. When the Dr uses the Tuning Fork on me, it’s the very SAME Vibration that I get 24/7 and only time it’s every stopped was if I had a TKR or high intense Surgery. But after 1-2 days it’s back. I know!_one other time was when I had Bronchitis back in March. My Dr gave me Predisone 20mg ( diff doses throughout the script)- Ana-histamine and I forget the 3rd one but it Stopped for about 3 Weeks. Then Bamm back like a Vengence. And these Vibrations are intense, they don’t calm down, I can sit in my Recliner and ya know how you’re twisted n such well I feel like the most intense vibrations are at my whole Bottom, than just the legs. It’s all the same Frequency but I feel stronger at the Bottom area. I’m like, ok I had a surgery, Did anyone drop a Pager 📟 in ME?
I’m serious, you’re reading this and saying, “ That’s Me” I was like that when I first started having these and reached out to here for any advice Help, a push in the Direction to who can help me. And I noticed then, I’m NOT the only one. So I pray there’s still hope that these can be resolved. If Anyone knows of any relief, Please do Share..I tell me Drs “I’m Not the only one going through this, Why is it so hard to Narrow it Down to the Nerve Root “? My Family has been a great support throughout this Madness, Without their support no telling what condition I’d be in. I know I couldn’t have gone this far without them. So, Is it a Brain or Spinal Issue ? God Bless our Country!!!