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Connection between Neuropathy and L4,L5 Issues

Neuropathy | Last Active: Dec 2, 2023 | Replies (53)

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@njed

@melissa59 - EMG tests at hospitals in PA, Maryland and MN. I got official dx in April 2016, idiopathic sensory motor PN. In 2018 PN was getting worse, got 2nd test at PA hospital, same answer and in 2018, also had genetic testing done. All good on genetic tests. In early 2020, went to Mayo in MN, they did EMG and test for autonomic neuropathy. I asked about a biopsy punch and neuro doc at Mayo said not necessary. Results of all 6 or 7 tests pointed in one direction. Idiopathic sensory motor small and large fiber neuropathy. In Nov of 2021, I was able to get an appt at Johns Hopkins, they confirmed all what Mayo said. So, I'm done with tests. Bottom line, I have what I have, and I honestly feel that even if the issue is caused by a lower back problem, no doctor will operate because I can walk into a doctor's office on my own with no pain. Doctors see numbness and bad balance as acceptable. I have friends and family in the medical community, outside neurology and they agree with my assessment. Now I concentrate on how to best live with PN, continue to travel and make necessary adjustments. I remain positive and above all, I keep moving. Best to you and others!!

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Replies to "@melissa59 - EMG tests at hospitals in PA, Maryland and MN. I got official dx in..."

That’s almost the exact train that I have been on.
The only plus is that they did absolutely every test they could and ruled out any devastating diagnosis. Other than IPN and my L4L5 issues, I have no serious problems. It really helped relive the mental stress I was going through and I am dealing with it in a much better and positive way.
Thanks to Dr Dyke and the great staff at Mayo

I’ve had neuropathy for years, have had L4-5 fused - caused from herniated discs, stenosis, etc. which I had before the neuropathy started, which was probably due to statin use.
I’ve had Covid twice in the past 6 months. Both times my neuropathy has gotten worse- I now feel like I have socks on, a new symptom.
There’s no treatment, hopefully it’ll lessen as the virus finally leaves, still have terrible balance and brain fog. I take 200 mg of gabapentin, which helped me sleep years ago when I had a lot of neuropathic pain, and I still take it with no side effects. Good luck- no cure but avoid Covid!!

Hello NJ ED,
I had a Laminectomy in 2008 total failure! "surgeon" took out S-1 L-2 L-3 L-4 L-5 WITH NO FUSION. Than years latter a fusion, that failed. How does a Laminectomy cause Small Fiber Neuropathy when Neuropathy is a Autoimmune related? I also have Sojgren's, Hashimoto's??? Went to Johns Hopkins saw Pain Management, nerve block and I because worse. Now I have for my spine A Medtronic Pain Pump. Helps only the spine pain, it works! I have pain 24 hrs a day.
Good Luck to you.