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Lobular Breast Cancer: Let's share and support each other

Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)

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@ahigge

I would like to ask others about timelines - how long after your diagnosis did you get surgery? My first ILC (10mm) was found 7 weeks ago. They then searched for and found another (6mm). I am not due to have a mastectomy for another three weeks minimum - so ten weeks from it first being identified. Does this seem like a long time? I have been fine about it all, but find the time delay concerning. I may be able to have a full mastectomy without reconstruction next week; I am wondering whether this could be worthwhile, but have not been able to speak with my surgeon. Thank you for your info!

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Replies to "I would like to ask others about timelines - how long after your diagnosis did you..."

I know how you feel! It is so hard to wait for surgery. I had ILC that was stage 1 in L breast and IDC that was stage 1 in R breast. No lymph node involvement. I was to have the bilateral mastectomy at Mayo 6 weeks after diagnosis but when I arrived at Mayo I had a big hematoma in my L breast from the MRI guided needle biopsy that I had in my hometown. Because of that huge hematoma they said they had to wait for surgery because that hematoma could hide something in the pathology that could dictate my treatment. I was so disappointed that I had to wait! They said I had to wait 5 more weeks for the hematoma to clear. They said it was ok to wait because my Ki67 score was 5% which is low. That test shows aggressiveness of the tumor. Did you have the Ki67 test? You can look in your pathology report to see if you did. If the score is 15% or over it shows it's more aggressive and you would benefit from chemo. Those extra 5 weeks of waiting were difficult but I figured I was at one of the best places to treat breast cancer and they would know what was best. So my bilateral mastectomy was 11 weeks after my diagnosis. During those 5 weeks of waiting, besides a whole lot of prayer, I started doing what I call Optimistic Self Talk every single day for 15 minutes. ( I wrote about it already on this site). I lay on my back, eyes closed, palms up and before the surgery I would repeat over and over " Love, Light, Optimism, Healing and Wellness. My tumors are shrinking, my lymph nodes are staying clear, the surgery will be successful, I will be well and healthy.etc. Optimistic phrases like that. I would set my phone timer for 15 minutes and keep repeating those phrases over and over till the 15 minute was up. It helped me so, so much. I still do it everyday but now I repeat the Love, Light phrase plus "I am staying in remission, I am staying free of cancer and I am staying free of rogue cancer cells. All is well in my body, I am just fine, Thank You for my healing and healthy body. "
I read a lot about the mind body connection so I believe this really helps us. I did read is that it's best to have your surgery within 12 weeks of diagnosis if possible. I hope you will get you surgery date very soon. You can try calling your Dr.'s office every couple of days. As my Mom used to say The squeaky wheel gets the grease." Sending Love, Healing and Wellness Wishes your way. ❤️

Hi @ahigge, you may also be interested in this related discussion:
- Wait time from diagnosis to surgery
https://connect.mayoclinic.org/discussion/wait-time-from-diagnosis-to-surgery/
How are you doing?