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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@marytech46hh

My Neuropathy has gotten worse. In 2021 The pain doctor placed a spinal stimulator in my back. Also L3-4 and L45 a Minuteman Screw. Since then I no longer can walk without a walker, and that is only short distance before i have to sit down. Both legs from knee down to both feet are numb, cold, and very painful. The Doctor has me on Gabapentin 300 twice a day, Elavil 50mg at bedtime. And Celebrex 100mg twice a day. For Pain Tylenol 4 every 6hrs. The pain is so intense mostly at night. I can't get relief at all. I've tried lyrica no result. Nothing is working. Any suggestions would be appreciated.

Thanks
MB

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Replies to "My Neuropathy has gotten worse. In 2021 The pain doctor placed a spinal stimulator in my..."
John, Volunteer Mentor | @johnbishop | Nov 17, 2023

Welcome @marytech46hh, I can't imagine how difficult it is for you having the intense pain at night with no relief and not being able to find something that helps. There is another discussion you might find helpful where members with similar symptoms are discussion pain management:
--- Anyone had a successful experience w/ Mayo Pain Rehabilitation Center?: https://connect.mayoclinic.org/discussion/has-anyone-successful-experience-with-mayo-pain-rehabilitation-center/.

Have you thought about or looked into a pain rehabilitation center?

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harley22 | @harley22 | Nov 17, 2023

I have same symptoms as you describe, but I’ve been on your same meds along my neuropathy course, and nothing has helped me.
Tramadol gives me some relief, and Susan’s Salve which is a CBD ointment rubbed on my feet,takes the edge off most of the time.
Would like to have just one pain free evening sometime.

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