← Return to Merkel Cell Carcinoma: I'd like to hear from others

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@hunter59

I was diagnosed with stage 4 Merkel cell carcinoma in Jan 2022 when I developed a lump in my neck. Biopsy confirmed the type of cancer and further test indicated it spread to my liver as well. I started immunotherapy in March on Keytruda and have been getting this every three weeks since. The liver is clear today and the lump in my neck has reduced in size to where it cannot be felt but scans still show it is present. We have no idea where this cancer started never noticed anything on the skin. I previously had esophageal cancer and had my esophagus removed and stomach pull up along with chemo and radiation. That was seven years ago and there has been no recurrence. The Keytruda affected my thyroid but it is now under control and I have had no other side affects. So the plan is to continue on the Keytruda as long as I continue to tolerate it. Keep positive thoughts as treatment options are always improving outcomes as research continues.

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Replies to "I was diagnosed with stage 4 Merkel cell carcinoma in Jan 2022 when I developed a..."

Amen to the "positive thoughts"! Thank you for sharing!

Hello @hunter59 and welcome to Mayo Connect. I appreciate you sharing your journey with Merkel Cell carcinoma. It sounds like your treatment was quite effective and that your medical team was able to assist with the side effects. You mentioned that the Keytruda affected your thyroid. Has the thyroid problem been treated with medication?

How are you feeling now?