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PN and Tamsulosin (Flomax)

Neuropathy | Last Active: Dec 10, 2023 | Replies (36)

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@chapanddrew8

Thank you Ray, I have been on the U2 and following this with scientist, for possibly almost 2 years now. I only have one parathyroid, which is kind of like auto immune, but they’ve not actually said it’s the culprit causing small cell Neurothpy.

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Replies to "Thank you Ray, I have been on the U2 and following this with scientist, for possibly..."

@chapanddrew8, if you've been studying this for going on two years, you're ahead of me. I remember when I was first diagnosed, I wanted to know two things: No.1: What's it called? and No. 2: What caused it?

It has taken 15 months to arrive at what I consider a satisfactory answer to No. 1: It's called idiopathic large fiber (sensory-motor) peripheral neuropathy. I'm happy with that answer. ("Happy" is perhaps not the right word.)

As far as No. 2 goes: I've pretty much given up trying to find an answer. I'm sure there is one (a cause), but I'm at that point where I don't want to spend a great deal of time looking for the answer. I figure idiopathic means idiopathic. I'd rather spend my time doing all I can to maintain max flexibility and build leg strength.

I say that not out of despair or frustration but instead out of plain ol' practicality. Now, if someone were to come along to tell me the cause of my PN, I'd give him a big hug. But right after the hug, I'd go back to working on flexibility and strength.

Life gets very straightforward, thanks to PN––straightforward and complicated, all at the same time. 😀

I wish you the very best!!!
Ray (@ray666)