Thanks for your perspective and kind words. I will look further into your link, but my experience so far is that the pharma assistance programs do not cover people on Medicare.
I did see an endocrinologist who bills herself now as a functional medicine doctor. She was of no help, proclaiming I did not have OP at all because my T scores were decent. She doesn't take Medicare or commercial insurance, so that was a very expensive appointment to hear a doctor re-define OP!
Like many people with medical conditions I find myself spending a lot time, energy and money doctor shopping. I am hopeful that having the REMS test will make decisioning easier. Either it will confirm the OP diagnosis, or will find I am not as bad off as I thought. I am going to see Dr. Bush in NC, and he has worked a lot with OP patients the last few years. My guess is I would have a better chance of getting the meds I need .... if I need them ... thru him. He is an orthopedist.
I am not too clever! I knew enough at the start of this journey to sign onto support groups like this one, and learned a lot from people like you. I also learned a lot reading Dr. McCormick's book on OP.
I have fallen three times since the DX, including one time straight on my butt and that hurt! But x-rays confirmed no fracture. That is why I am not certain that my DEXA scan tells the full story, and that the REMS ultrasound may provide better context.
I appreciate your saying to get the comparison test. Thank you again for sharing your perspective.
Radius Assist for Tymlos is available to Medicare recipients who meet the following requirements:
To be eligible for Radius Assist as Medicare beneficiaries, patients must not:
be enrolled in Medicaid, Tricare, Veterans Health Administration, or Indian Health Service benefit programs;
be eligible for full Low-Income Subsidy (LIS) from the Social Security Administration;
and Patients in NY, PA, or WI must not be eligible for the State Pharmacy Assistance Programs
There are income based eligibility criteria as well.
Radius Assist link: https://radiuspharm.com/radius-assist/