irishpeaks, I was, and in, the same boat. Several years ago I had 5 ICD shocks in a 24 hour period. It was devastating to deal with. I developed PTSD Anxiety/Panic Disorder out of it.
I am not sure of the number here but the Mayo Psychiatric Department had me do a test and anything over a 15 was definitely PTSD. My number score was double that. That is when the anxiety medications was recommended but had side affects on heart conduction (something about causing a delay in a electrical signal) and then the pyschiatric provider doing a complete team approach and consensus from all my specialist to agree on best option and medication being recommended for my PTSD anxiety/panic disorder.
Along with that medications and a lot of fine tuning my pacemaker the PTSD Anxiety/Panic Disorder has improved where I went from not wanting to leave house due to fear of a shock and embarrassment to occasionally worrying about it in crowded situations.
I exercise a lot and that too help reduce my stress over this. I am not sure everyone knows the tremendous shock you get with an ICD shock. It is really traumatic on your body and you have no control at all. Then those who have had one will agree having a panic/anxiety attack is another very upsetting situation that I hope I never had another one again.
Getting your health providers working as a team is critical. That is what I like about Mayo as they did just that when deciding how to treat my PTSD Anxiety/Panic Disorder with medications which really did and does help.
Sounds like they have things sorted out and have you headed in the right direction, glad to hear it.
Ironically I have worked as an electrician for a couple of decades and have taken some incidental shocks throughout my career. That being said, there is nothing that comes even remotely close to what an ICD shock delivers. It is beyond comprehension until one has experienced it. There’s plenty of “tough guys” that say they just brush it off and keep going, but that’s complete nonsense. It is a very traumatic situation and hard to describe.
It’s been close to two years since my last shock, so I have been able to “relax” about the situation some. Meds have definitely helped along with the passing time.
Keep fighting the good fight and glad to hear of other successes in the treatment of this issue.