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CAT SCAN - how often?

MAC & Bronchiectasis | Last Active: Nov 23, 2023 | Replies (26)
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@sueinmn

@meadows I had to look back to see because it has been 5 years. At first, I had CT scans every 3 months because I was quite ill and the lungs were getting worse. During treatment, it was every 6 months. Since I stopped, once roughly each year. My pulmo wants to skip this year unless I have a problem in the next 6 weeks because I have gone the entire year without an exacerbation or a serious asthma attack. (I hope I don't jinx myself by saying this!)

I feel very fortunate that airway clearance and controlling my asthma has kept me pretty healthy.
Sue

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Replies to "@meadows I had to look back to see because it has been 5 years. At first,..."
cwal | @cwal | Nov 16, 2023

Do they always get a regular chest CT or do they order an HRCT each time? Which is the recommended "standard" for follow up with MAC?

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tconz | @tconz | Nov 16, 2023

Sue, I just got back from NJH and I will be getting off the Big 3 along with Amikacin Feb 1st if I continue to test Negative for MAC. I will continue with Sodium Chloride and Levalbuterol Pump along with airway clearance. Since you are at the 5 year mark I was curious as to which airway clearance you are doing (it is obviously working very well for you).

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frankie160 | @frankie160 | Nov 20, 2023

Sueinmn, Mentor,
It was terrific to see in your post your condition has improved greatly over the last year, I always read your posts very carefully and have learned so much from you and others in our community. I hope I can follow in your footsteps.
Once I started Airway Clearance and nebbing 3 % Saline in the fall of 2022, the constant, chronic cough eventually disappeared.
I have had two negative cultures for the MAC which was diagnosed in June, 2022, and have been on the Big 3 since Sep, 2023 and after just two months on Arikayce which I started in July, 2023 of this year I am on a path to clear the MAC. My chief complaint is that my breathing capacity has declined and my Pulmonary Team and ID Doc are not able to pinpoint since I have so much going on...COPD/Empha(severe), BE and the MAC. Decided to invest time and energy into Respir. Therapy as you did and waiting to see the results over time. I've had 6 sessions of mild exercise routines.
I'm hoping to at least pinpoint why my shortness of breath seems to be declining and learn more about what I need to. Thanks again for all that you do for our community.
Flo@Frankie160

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