← Return to Chronic Pain members - Welcome, please introduce yourself

Discussion

Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 50 minutes ago | Replies (7075)

Comment receiving replies
@virtuous69

Hey everyone: Virtuous69 here, Have not been on Mayo Connect site for some time. Major Fibromyalgia flareup,achy knees and cervical stenosis on top of all my other spinal issues. I wanted to cry when I read some recent posts, not only about Fibro, but internal scar tissue and abdominal pain which I have not posted anything about, because of the other issues. Have had one C-Section and a hysterectomy where obgyn surgerion found a web of mangled stuff and endometrious after being told I had a very healthy uterous. I scar tissue easily and I know I have massive scarring in my abdomen. Further exploratory surgery would probably add more adhesions. Some times my intestines seem to turn themselves iinside out if doing any mild abdominal exercises. Agree about magnesium helping with leg cramps. Had two hip replacements and knees are now starting to complaiin quite a bit.
And yes stress aggrevates my Fibro to the max. My husband is nearing 80 and I see his personality changing quite a bit with hearing loss and cataracs. We live from penny to penny and must move from our adult community mobile home in San Jose very soon. Had to let housekeeper and gardener go, and our charming place has gone to wrack and ruin. I also joined the :"Just want to talk group" and met IndianaScott (volunteer mentor with great sense of humor. who was very encourageing.. I
I live very near Los Gatos and think I've heard of Dr. Cook. I'm supposed to get some blood work done for my diabetes and liver function, but cannot go, as Medicare and Aarp not covering blood work. Since when. ??? I applaud all of you. We all have our version of meds, and treatments, and its hard to believe we have to suffer like this for a lifetime. I have a very strong believe in Jesus, and try to manage a grateful spiriit. I have a loving husband, who in his nervous state yells alot and seems like a different person from 2 years ago. I am not able to handle his off and on again personality changes and its my respoinsibility to get this mobile home cleaned, deflead, powerwashed,, painted, and carpet steamed with no extra money. We must move out of the Silicon Valley to another county or state. Weather is a big factor for my fibromyalgia. Dear new ones, hang in there, that is all we can do after working on diet and getting all the info we can to live healthier.lives. Mayo connect is the only support I have and so grateful I can go there and even complain about my lot when I''m overwhelmed
. P.S. I was invited to jump into a discussion about upper leg pains, and I was in such a depressed funk, I could not write on Connect. I think it was change in weather. I use a knee brace and any good arthristis cream for joint pain when needed. My PT used to help alot with Ultra Sound and massage. I've wondered if he could ultra sound my intestines to soothe them down.(??) Is that even possible??
Love you all, Dori

Jump to this post


Replies to "Hey everyone: Virtuous69 here, Have not been on Mayo Connect site for some time. Major Fibromyalgia..."

@virtuous69 Fibro flares are dreadful. I tell myself the pain is not real because I look healthy so I ought to be vibrant and active. I am not faking nor attention seeking. Moving to a more comfortable climate is not an option. I live alone.
I have done all I know to do. I have been prescribed meds in the past and they messed me up. I use a lot of Vapor-rub which sometimes helps. Since I am old and retired it seems I do not deserve to have quality of life. Up to me to advocate for myself. When others were trying to run my life things were really a mess. Thing is we continue to try...

I am 75 and the one thing that does help me is to keep active I start slowly with some stretching Ages ago the class I took when first diagnosed was to tighten your muscles then relax but I have to exercise then Epsom salts when U hurt ,mine is my thighs.,but to sit all day isn't good.When a flare up ,I don't want to do it but gradually I start Tramadol when needed.Advil and Tumeric on those days.

@virtuous69

It's good to hear from you again. I've been thinking about you, wondering if you have moved.

I'm surprised that Medicare won't pay for your lab work. I have a lot of labs and never have been declined.

I think your doctor should advocate for you.

Jim