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Bad absence seizures withdrawing from Aptiom
Epilepsy & Seizures | Last Active: Nov 16, 2023 | Replies (11)Comment receiving replies
@kimroepke
I've had Epilepsy for 57 years and changed medication quite a few times and only had a couple seizures, at least that I can remember. I never took Aptiom however. Were you discontinuing Aptiom according to doctors orders? Had you started taking Vimpat while decreasing Aptiom?
Absence seizures generally last a few to maybe 20 or so seconds. But I’m wondering if you were in Absence Status Epilepticus because of the duration. Personally, I would think 2 days is excessive.
I have been told it took a man 30 days to fully recover from a long Tonic Clonic seizure. whether it actually happened I don’t know that’s just what he told me. Do you usually have Absence seizures of any duration or only Focals. Have you talked to your Neurologist about this incident? If not, I would contact h/her.
I hope you keep us informed about this episode.
Take care,
Jake
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Regarding my epilepsy I have been diagnosed as having Temporal Lobe Epilepsy/Focal Complex Partial Epilepsy Intractable
Without Status Epilepticus and Sclerosis Temporal Mesial. I have both gelastic and absence seizures. I had the MRI laser ablation surgery in March of 2020 which helped my seizures dramatically. I’ve also been on Aptiom since 2019. I built up a tolerance to it and now my body doesn’t absorb sodium. I can’t keep my body temperature up. It keeps dropping very low which causes many problems and I have to be hospitalized. I have my Minnesota Mayo Clinic neurologist working with my Nashville Vanderbilt neurologist. They both decided to taper me off of Aptiom and onto Vimpat over 4 weeks. I’m on week 4 and I only take 200 mg of Aptiom this week and I was on 1600mg. Next week I’ll be taking 200mg Vimpat (lacosamide) twice a day and no Aptiom. I usually have seizures for a minute or two. This time I was on a zoom call with a doctor who was working with a Dartmouth Epilepsy Program. I didn’t respond over 15 minutes, so she finally called my local police. They sent an ambulance and took me to the hospital. I don’t remember any of it. That was Thursday afternoon and it’s Tuesday evening and I still don’t feel right. I’ve never had an experience like this before. I’ve been talking to my Local Neurologist a lot. He’s managing things since I’m not in Minnesota right now. I’ll let you know what happens. Thanks for checking on me.