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How often does PMR progress to GCA?

Polymyalgia Rheumatica (PMR) | Last Active: Nov 2 9:39am | Replies (128)
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@joybannister

Wow. I’m happy to hear you didn’t lose vision. If I am traveling and it comes on suddenly (symptoms) would you recommend taking 40-60 mg pred until I can get to a doctor? I have PMR and want want to do a sailing trip in the BVI but worry about GCA hitting me suddenly.

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Replies to "Wow. I’m happy to hear you didn’t lose vision. If I am traveling and it comes..."
julie4868 | @julie4868 | Nov 14, 2023

That’s what I would do. Maybe pass that by your doctor. I always have extra prednisone with me when I travel in case of relapse symptoms.
Hope you have a great vacation!

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isabelle7 | @isabelle7 | Mar 20 1:40pm

From our experience I would recommend at least 40 mg if you develop symptoms of GCA - headaches, jaw pain, tender temples, tender scalp, loss of appetite were my husband’s symptoms. He had to be put on 80 mg but he has a severe case. I’ve read 40-60 mg is what is typically given for GCA. Then you’d need to get a temporal artery biopsy to confirm a diagnosis of GCA. Hopefully you won’t get it.

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