← Return to Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

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@frances007

in reply to @windwalker I am so sorry about your daughter! I too have severe Raynaud's Syndrome, and for a period of time I was taking a daily low dose aspirin at the behest of my former rheumatologist, who thought that it would be of help, but it was not.
I did see a new rheumatologist just a couple of weeks ago, and her only suggestion was to wear gloves, which I do pretty much everywhere I go, especially now that the weather is colder. Warm water helps as well. I have been advised to learn to live with it, which is what I have been doing for the past 30 plus years.
Recently I had a 2 hour MRI and when I went into the room where the machine was located, my fingers immediately turned white. I asked the technician if he had any gloves, which he did not, and I was advised to sit on my hands during the procedure. For what it is worth, I was required to remove all of my clothing except for my socks because they were concerned that my clothing may have had metal fibers. I was not wearing a mesh outfit, everything was 100 percent cotton. I had dressed as I always do for these exams. I was not even given a blanket or a pillow for my neck. Suffice to say that I came home and drafted a 5 page letter to the supervisor of the facility about my experience, and offered to come down and give him a powerpoint lecture on the heavy metals that are used in most all textile manufacturing. I have a B.S in Home Economics with an emphasis on Textile Manufacturing and Fashion Merchandising, and I am 100 percent certain that my clothing did not contain metal fibers. Interestingly enough, they were not concerned about possible metal fibers in my socks. Had they, I probably would have walked out because I was so cold. I apologize for going off on a tangent here. But many people who do not have the problem that your daughter and I share, simply do not understand how cold temperatures can have an adverse effect on our physical well being.
I wish you the best of luck. I have a great pair of fur lined ski gloves that I have to put on every time I go to the grocery store. I also bought a lovely pair of handmade wrist warmers that are made of very nice wool, and I often put them on at night when I go to bed.

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Replies to "in reply to @windwalker I am so sorry about your daughter! I too have severe Raynaud's..."

Well said! I watch my daughter suffer with it and I am always looking for things to help her keep those delicate hands and feet warm. I never heard of wrist warmers, what a great idea. I shall look or some or even crochet some. Thank you so much!