1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Moderator
Lisa Lucier, Moderator | @lisalucier | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

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Hello, @caligodgirl. I'd like to add my welcome to Mayo Clinic Connect. I also thought you'd like to meet some other members on Connect who have talked about abdominal scar tissue, or adhesions, like @judydex007, @rdrdhap, @ginpene05, @kag13 and @nonnie1.

Here are some discussions on Connect that may be interesting to you on adhesions:

- recurring abdominal adhesions: http://mayocl.in/2qWRN2R
- Bowel obstructions caused by adhesions following abdominal surgery: http://mayocl.in/2nhtuhj
- Scar tissue surrounding organs: http://mayocl.in/2o7g2LT

Have you found any strategies that help at all with the pain?

REPLY
Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Jan 11, 2018
In reply to @jamezy13 "Thanks for all the great info on here. I had a lower back fusion over 10..." + (show)
@jamezy13

Thanks for all the great info on here. I had a lower back fusion over 10 years ago which helped at that time. I am now more pain symptoms which has brought me to see a pain specialist and a back surgeon. I am just looking for relief again. One wants to put a nerve stimulation device in my back which the back surgeon said that should be last resort. Ibuprofen I use everyday. Hydrocodone on bad days. I am just wondering which is the best surgeon to remove the old hardware in my back then install new that will fix my back again. I am 58 yrs old right now

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Hello @jamezy13,

Welcome to Connect. Thank you for posting about your back issues and sharing a bit about yourself. We have a recent conversation on Connect that members are discussing back surgeries and lingering pain that I think you may find relevant. I suggest clicking on the following link, reading through the discussion and participating where you feel comfortable,

- Surgical solutions to chronic cervical/back pain, https://connect.mayoclinic.org/discussion/surgical-solutions-to-chronic-cervicalback-pain/

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

Jump to this post

Hi Cindy @caligodgirl

I would like to add my welcome to Connect along with the others. I can see you've already gotten some good information from Teresa @hopeful33250, Justin @JustinMcClanahan and Lisa @lisalucier. My chronic pain is minute compared to what you are going through. It's really good that you are a strong advocate and are asking questions and looking for answers. You are not alone. There is a TED talk that I found very inspiring and helpful. Hoping it may give you some help or insight.

What happens when you have a disease doctors can't diagnose TED talk by TED Fellow Jennifer Brea who became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome.
https://www.ted.com/talks/jen_brea_what_happens_when_you_have_a_disease_doctors_can_t_diagnose
John

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

Jump to this post

Hello again @caligodgirl

Since you last posted, I did find a website of specialists who study this disorder. Only a few are in the U.S., however, one is at Wayne State Univ. which is in Detroit, MI and there are a few others who do some work in the U.S. Here is the link to the website where they are listed by country and name, http://adhesionrelateddisorder.com/doctors.html. It looks like Sweden has done a lot of work in this area.

Also, here is patient website with information from others like you, http://www.adhesionrelateddisorder.com/

Teresa

REPLY
Mentor
John, Volunteer Mentor | @johnbishop | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

Jump to this post

@caligodgirl another hello again ☺ -- I forgot to mention another tool I use for research on drugs, medical procedures, etc. is Google Scholar (https://scholar.google.com/). It is useful to find the latest info on topics and allows you to sort the links it finds by date. I did a quick search on the phrase adhesion related disorders and it came up with quite a bit of information. I'm not sure if it's helpful but it could be:
https://scholar.google.com/scholar?hl=en&as_sdt=1%2C24&as_ylo=2018&as_vis=1&q=adhesion+related+disorder&btnG=
John

REPLY
caligodgirl | @caligodgirl | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

Jump to this post

Hi Teresa,
I cannot say thank you enough for this information and all the other info and links from the other mentors, moderators and members. GOD Bless you all!! I will keep everyone posted as with what I learn and who I see so that it can b shared.
Sincerely,
Cindy

REPLY
caligodgirl | @caligodgirl | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

Jump to this post

Thank you John! This information is very much appreciated!
Sincerely,
Cindy

REPLY
Parus | @parus | Jan 11, 2018

The barometric pressure works a number on me. Anyone else experience thus? Curious.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Jan 11, 2018

@parus the barometric pressure and temp changes sometimes affects my PMR and joints. A little more achy breaky...☺

REPLY
peach414144 | @peach414144 | Jan 11, 2018
In reply to @hopeful33250 "@caligodgirl Hello Cindy and welcome to Mayo Connect. I am so sorry to hear of this..." + (show)
@hopeful33250

@caligodgirl Hello Cindy and welcome to Mayo Connect.

I am so sorry to hear of this difficult pain and internal bruising from scar tissue. Having lived with this for 5 years sounds so hard.

Do any of the doctors you have seen offer you any suggestions for this scar tissue problem?

Often large medical centers have a plethora of specialists who can help with severe problems like you have reported. Have you considered a second opinion from a large medical center like Mayo (they have locations in Minnesota, Florida and Arizona) or perhaps a large medical universtiy in your area?

We look forward to getting to know you and supporting you.

Teresa

Jump to this post

went to orthopedic md, given shot in knee. was told it will not take effect till about 3 days hopefully. this may not be a big thing but when it brings up the blood pressure into a deadly high it is very serious. and as we all know, ouch it is very, very painful. i thank my lucky stars tht this is not as serious as some of us have. i pray for all of us. love peach barb

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