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Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Neuroendocrine Tumors (NETs) | Last Active: Feb 26 7:54pm | Replies (77)
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@suelehmann

I have the same situation but have persevered with the Lanreotide injections monthly for 6 yrs now. I do find my life far more difficult to manage with the side affects. What to eat without upsetting my metabolism etc etc. I have practically given up going out to dinner now which is something I used to enjoy, also going away, find it too much of a worry!
Can I ask what side affects you found the worst, I am just told by my Oncologist that it’s something you have to work out for yourself as every one is different.I had no problems before the Lanreotide.
Many thanks.

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Replies to "I have the same situation but have persevered with the Lanreotide injections monthly for 6 yrs..."
Teresa, Volunteer Mentor | @hopeful33250 | Nov 18, 2023

Hello @suelehmann and welcome to the NETs support group on Mayo Connect. You mentioned that you have been taken Lanreotide injections for six years. If you could share a bit more about your NETs experience, I'm wondering where your NETs are located? Have you had surgery in addition to the Lanreotide injections?

I'm assuming that your problems with Lanreotide injections might have something to do with having diarrhea? Has your doctor offered you any other treatment that might help? As you have a problem eating, I'm wondering if you have you lost a lot of weight.

Please remember that it is always your right to get a second opinion, if you don't feel that your treatment is going well, and the side effects are too difficult for you. Are you currently seeing a NET specialist or a general oncologist?

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