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What is Dry Bronchiectasis?

MAC & Bronchiectasis | Last Active: Nov 14, 2023 | Replies (9)

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@cwal

I'm not concerned about where I got MAC which led to Bronchiectasis. MAC is everywhere. I'm just trying to learn about different aspects of the Disease to better understand and care for myself the best possible way. This site has been quite helpful but I'm still looking for answers to some of my questions.

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Replies to "I'm not concerned about where I got MAC which led to Bronchiectasis. MAC is everywhere. I'm..."

Hello, I will share; not sure this will help but hope so.
I was diagnosed with MAC and bronchiectasis in 2020.
I had no cough, produced zero sputum. I was SOB when climbing any amount of stairs, could not walk fast, and was waisting away with exhaustion and depression from not understanding what was happening to my body. I was a 64, very physically active (daily exercise run, walk, bike, golf, gardening, etc) and Covid hit…the world was scary. I dove into questioning any and all doctors I could. The pulmonologist treated me for late onset asthma (there as absolutely no asthma in my family)…I got worse. I became hypertensive, cardiac workup said basically I was very very healthy. This continued and I became depressed. One morning I fell to the floor with chest pain and my doctor said rush to the hospital where they checked or a PE (pulmonary embolism). He radiologist saw my bronchiectasis and said I should consult a pulmonary doctor. Story continues. I repeated the CAT scan with my pulmonary doc and was scheduled for a bronchoscopy. Remember, I had no cough or sputum production. Pulmonologist did a lavage and cultured what he could scrap off or unplug from my airway…it came back MAC.
To this day, with all the saline (7%) I nebulize daily, exercise, Aerobika, saltroom therapy, huffing etc…I have no sputum. The ID doctor says I am a subtype…Lady Windermere’s Syndrome. I have autoimmune markers that light up in my blood work, but to this date not RA. My genetic inheritance has me set up for autoimmune…type 1 diabetes, BRCA positive, Raynaud's, but I am diagnosed with MAC and bronchiectasis.
I hope my story helps you with some questions/answers.
I go yearly to NJH in Denver and Dr Daley says I am stable, bronchiectasis stable, and I continue with no cough or sputum. I maintain my regimen of care and practice gratitude daily.

Please stay healthy.
Regina