I had 30 round of proton radiation for a low risk (Decipher test) for a 3+4-7 Gleason score with cancer in prostrate only with negative bone scans and PSMA test.

I had my procedure done at UFPTI in Jacksonville Florida as Mayo Jacksonville did not offer proton radiation. With all the information I have read since my procedure about the 5 high dose treatments I think the only thing I would change would be going to Rochester or Phoenix and have the 5 high dose treatments.

The care and treatments at UFPTI were nothing less than outstanding but was outside my preference to stay within Mayo. I am not sure they offered the 5 high dose option and at that time had not heard much about the high dose 5 treatment plans. I have a ICD/Pacemaker so UFPTI physics department recommended I get pencil beam radiation treatment to ensure the least amount of radiation was around the ICD/Pacemaker. I had to have the pacemaker checked weekly to ensure the radiation was not affecting it.

I would have kept my decision to have the Decipher test, PSMA, and the bone scan. It was really assuring to have my Decipher test lower my diagnosis from intermediate to low risk, PSMA negative and bone scan negative. I would also still have gotten the Space/Oar instead of balloons.