← Return to How do you plan your day and conserve energy? Are you a Spoonie?

Discussion
Comment receiving replies
@brighterday

I am trying to stay positive and always have a list to guide my priorities, but find I’m often “exhausted, achey, and cranky.” I get so frustrated! Yes, I’m early in the MG treatment process, but I can’t even get through a shower without resting. In fact, I’m sitting here in a robe right now trying to catch my breath. I still need to get dressed and take care of wet hair. Sometimes I just feel like crying.

Jump to this post


Replies to "I am trying to stay positive and always have a list to guide my priorities, but..."

I have the same problem. I get out of breath and my heart beats like a drum in my chest just making the bed. So, now I pull the sheet and blanket up and straighten it out, then I watch a little TV or play on my computer. When I am ready, I go back and finish it up. Some days I don't make the bed because I want to do a load of laundry. It's all about not minding doing it in stages. Give yourself a break. I think you are beating yourself up because you wish you could still do it like before. Well, guess what, you can; it's just doing it differently and ending up with the same results. Accepting that you have to do things differently than before is the hard part. Just remember you can do it. Good luck and keep smiling.

@becsbuddy and @SusanEllen66 I read this "I am trying to stay positive and always have a list to guide my priorities, but find I’m often “exhausted, achey, and cranky.”"
Boy, am I there right now - six weeks ago, I threw my spoons out and tried to GO, Go, go...
Fast forward to last week, when I was hit by a trifecta - fatigue, bad air quality and heat & humidity - and I can't sleep well. This week, I have backed off, found my spoons, and tried to rest - but I find myself in a full-blown inflammatory flare, with added breathing issues and a LONG to-do list as we prepare to move from our Winter to our summer home.
So yesterday and today, I did the dishes, packed a few boxes and spent some computer time. I also restarted my bedtime relaxation/meditation that I haven't needed for months.
Just a reminder that being a Spoonie is a long-term proposition.
Sue