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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 3 hours ago | Replies (7073)

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@gailb

I am laying in bed this morning having an anxiety/panic attack and trying to not let it get out of control. My heart is racing and I feel shaky all over. I just want to curl up in the fetal position and be unconscious right now. I won't let myself do that though. I know I'm in withdrawal as I'm in the process of getting off Tramadol 50mg. I was taking it 4 times a day, got down to 2 times a day, then had a setback after a 6 hour plane flight and added 1 tablet back. Now, I'm going back to 2 a day and it's really hard. I just know I have to get off this medication. My pain now comes from the Tramadol withdrawal. I know i can do this as I've successfully gotten off Gabapentin and Baclofen already this year. I am now at 10 hours between Tramadol pills. At 12 hours it is completely out of my system. I'm not sure what to do after I'm at 12 hours between pills. I guess I'll play it by ear at that time. I've thought about taking 1/2 pill at that point and going as long as I can using 3 half pills a day. I'm not ready to go there yet as I'm still reacting to going 10 hours between pills. I wait until I'm no longer having withdrawal pains at each level down before I decide to cut back further. My next goal is 11 hours between pills.

One year ago I had a laminectomy on my L5-S1, with remaining degenerative disk disease and herniated L4 that was going to require major surgery with rods and pins to repair. I was put on my three medications, plus diazapam in November 2016 for the pain from my disk impinging on my spinal cord. I had my outpatient laminectomy surgery on December 22, 2016. I remained on the meds until I could no longer stand the side effects of the Gabapentin. My pain doctor wanted to increase the number of Gabapentin pills each day, but I was losing large amounts of memory already. I did the opposite and cut back. My doctor was not supportive of my getting off it and gave me no advice or help with it to my complete surprise. I called my pharmacist who gave me excellent advice to withdraw from the Gabapentin. I succeeded and also got off the Baclofen during the same time. My pain was better after I was off the Gabapentin, which I found interesting.

The reason I am getting off all the pain medications is because other than the usual arthritis pain, I'm pain free. I dropped out of physical therapy after 4 months of not getting better. I read about on Mayo Connect about a therapy called "Active Release Technique" (ART) that some people had used successfully for chronic back, hip, thigh, knee, ankle and foot pain. I couldn't go up steps or walk without great pain. I was suffering that pain on my right side and couldn't find any relief. My surgeon told me to try everything short of surgery to see if I could get relief as he really didn't want to do the major surgery. I researched the technique on line, and decided to find a practitioner in my area. I reseached on line again and found a Chiropractor who had multiple certifications in ART, at different levels of specialty. I asked a naturalist and masseuse I highly respected about Dr. Todd Andrews, and my friend said that he actually used Todd for his Chiropractic treatments. That did it for me, and I started getting ART therapy from Dr. Andrews. After 3 weeks of 2 treatments a week, I was nearly pain free on my right side! I made appointments for twice a month for a couple of more months, and now I have one "tweak" a month. I am without pain as far as I can tell since I'm still taking the Tramadol. I am blown away by the effectiveness of the ART treatments. It's saving me from surgery at this point. I'm also looking for a Yoga class for 2018 to keep me moving and help my joints.

I'm telling my story so people know there is hope for chronic pain. I have had my back pain and weeks spent in a wheelchair or in bed periodically for 20+ years. When I was young I just handled it nd kept going. I'm 69 years old now and it was too much to just handle in 2016. I want to travel now that I'm retired and I don't want to be defined by my illness and pain. I don't want to be an invalid. So, I was willing to do what it would take to make my back better and my pain less. It's not easy, and I understand the toll that pain takes on your/our lives. I feel like I have my life back right now.

In addition, I just started using CBD Living Water the last 2 days. We only bought one bottle of the water (2servings) to see if it worked on my arthritis pain. It really helped so I will be getting the Tincture (less expensive than the CBD infused water) to use as needed. I'm hoping it will also help my withdrawal symptoms too. It doesn't make me "high" as I don't like that about marijuana in general. I'll let you all know the effects of the CBD tincture once I've used it for awhile. I live in California where it is legal to use marijuana, and I had a Medical Marijuana prescription this year. Couldn't use it due to the Federal laws and restrictions on prescription drugs and marijuana.

I hope this informationis helpful. With love, Gailb

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Replies to "I am laying in bed this morning having an anxiety/panic attack and trying to not let..."

By the way, I'm over my anxiety attack. Gailb

Gail (@gailb) - thank you for sharing your struggle. I've read a little about Active Release Therapy but will have to read some more. You sharing your experience means a lot to those struggling with chronic pain. I have lower back pain but not enough to really complain other than it keeps me from doing much walking, standing or sitting for any length of time. I'm also a side sleeper and I'm not able to sleep much on my left side without my left arm (usually away from the head under the pillow) going numb/tingly. Then I struggle to roll over to the other side and can feel my lower back not liking it. I consider myself lucky that the pain is not worse -- I don't think of it as chronic pain by what others are suffering.

I saw an interview by Dr. Terry Wahls with Brian Richards the Founder of SaunaSpace on near infrared sauna therapy that was pretty interesting and caught my attention when mentioning use for neuropathy. The full sauna product is a little spendy for me unless I hit the lottery but they also have a single lamp product for about $350 which is not cheap but would feel pretty good right now with the outside temp of minus 11 degrees. I always have cold feet so I thought I could get double use by using the lamp at my computer during the day and on my feet in evening.

Here's the interview which is about 11 minutes:


John

what helped me very, very much with arthritic and body pains was soaking in a very hot water tub. doing this for an hour with constantly allowing more hot water to enter into the tub to keep up the water temperature. oh how i miss this home therapy. i am 80 and cannot get out of the tub any more. even if i could afford the new walk in tubs, they are not deep enough and you cannot lye down in the tub. if i ever win the lottery i will definetly, absolutely create an elderly acessable hot tub that allows the body to lean back AND ENJOY the heat. now i use heat pads or blankets. they help somewhat but not as good as the tub.

@peach414144 I definitely enjoy the heat too. Electric blankets get me through the winter 🙂

@gailb

I'm glad the anxiety bout finally let go. I've resorted to the fetal position myself. Sometimes it's just the only thing to do.

There seems to be more information and options out there than I can keep up with. I'm on overload when I read about the possibilities. I need a personal pharmacist to help me sort through the good, the not so good and the hoaxes.

Good luck with the reducing process.

Jim

Actually @johnbishop, my chiropractor uses lasar heat therapy on my area of pain for 5 - 15 minutes before he does the ART. I really think that helps it work. I hope you find the technique helpful.

Gail, Volunteer Mentor